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Hi all! I was browsing reddit when I decided to search ALS... I saw a woman post about having her Father record himself reading books for her children. I'm wondering what have you done with your PAL to create lasting memories for when they pass? Some ideas I have: My Dad has a Tobii so...

Hello everyone, I posted awhile ago, but I need to know that I am not the only one feeling like my ALS boyfriend uses his diagnosis as an excuse to not be involved in activities. And please let me explain before anyone thinks I am being selfish. We were together for several years before his...

Hi all. I'm 27 years old and I've had a rough 1.5 months. I know a lot of this sounds nothing like ALS but please bear with me. Around late January, I began having daily headaches for about 2 weeks (I'm not one to ever get headaches). I began to have a lot of brain fog and head pressure at...

Hi everyone. I was just diagnosed on Friday. I'm 31 years old, married with three young children. My husband and I had let our respective parents know that ALS was suspected, and when I received the diagnosis we gave them that update. Over the weekend and through today I have been getting...

My wife and I have recently moved and we have had to change clilnics. I have not been impressed with the new clinic and have been trying to figure out what has really been bugging me about the new set of doctors I am seeing.... The old clinic I went to, I shared one of my hobbies with the head...

Maybe this belongs in another thread, but we are hearing that the Mayo clinic in Minnesota will be doing a stem cell research study this year, along the lines of a recent study in Israel. No details yet, but we will know more when go to our clinic appointment in March. Has anyone else heard of...

I started having problems and about May of 2015 I am now on the date of February 26th 2017. My hands and feet are paralyzed have no equilibrium. I need help with everything except I can get in the bath and climb out on my side period I have to use two hands brush my teeth and it takes forever to...

Good day everyone, I have joined the ALS society because well it is a cause that is near and dear to my heart. In grade 8 I wrote a paper on woman who asked for the right to die with dignity as this extremely painful degenerative disease took her life. Her story impacted me on so many levels...

I am very concerned. **read the sticky** I should definitely start this post by saying that I am 18 and have horrible anxiety about my health. I really really really don't want to show any disrespect by posting about my concerns and I hope no offense is taken by anyone who has or know someone...

How does fALS work? I know with fALS you inherit a defective gene. That gene normally codes a protein that performs a function. The defective gene in fALS mis-codes the protein and causes a vital process to malfunction. Is that basically how it works? Assuming it works like I described above...