hearing

  1. M

    Concerned...

    Hi Everybody, I just don't want to have long threads or ask multiple questions, wanted to check if the following scenario would be a chance of ALS or not ... I me :( Since 1 month and ~ 1 week I notice fasciculation in my calves and when I run or workout or randomly some very very mild cramps...
  2. swalker

    Wheelchair Troubles

    I went for a magnificent wheelchair ride over the weekend in my Permobil C500s VS wheelchair. I rode the Gondola to the top of Vail Mountain and took the ride down Village Trail. It is about a 7 mile trail all on dirt roads. The weather was great and I truly enjoyed myself. During the ride...
  3. N

    Where to Now?

    Hello to everyone, My father, age 56, was recently diagnosed of MND. It all started April 2016 when we noticed my dad started dragging his right foot. He began to trip and fall more than ever in his life. He was extremely athletic all of his life and has worked from the early age of 7 until...
  4. A

    My sweetheart

    My sweetheart passed away last Friday and even though I know he is free now from this horrible illness I am inconsolable, and all I want to do is cry. I met my beautiful husband online and we where inseparable. For us was second marriages, and he was a loving father for my children. I am very...
  5. M

    Supplements That Help

    I'm interested in hearing what supplements, if any, you've tried and how they may have helped? Or any that you avoid and why?
  6. KarenNWendyn

    Physical therapy questions

    I've seen some discussion about this in other threads and also read a lot on line, but I thought it would be good to have an updated discussion about the role of PT in ALS. I've read that some light aerobic and even light weight training is beneficial for stabilizing neuromuscular junctions...
  7. LizF

    Sudden loss of limb function, arms

    Hello, fellow pALS I have limb onset which claimed my legs first, which took a year. My arms just started to weaken last month. I feel pain, burning, fatigue, aching-nothing at all like it felt when my legs went. My legs just stopped working, no pain or discomfort at all. I feel as though...
  8. D

    New report on California aid in dying law

    According to the Cal Dept. of Public Health, up to 20 ALS patients have taken their own lives under California's "aid in dying" law after six months. I do not oppose the general idea of permitting physicians to assist the suicide of terminally ill patients who would otherwise suffer...
  9. S

    Been a while

    It has been quite a while since I have visited, but I had to step away and get it together as some of ya'll understand. Dad passed about 2 yrs ago. I have moved on with my life but man I sure do miss him. Grief seems to hit at the most unexpected times. I consider myself a strong person but I...
  10. KimT

    Book Definitely Worth reading or hearing

    I downloaded the audible book, "Prayers & Promises When Facing a Life-Threatening Illness" written and narrated by a PALS named Ed Dobson. Pastor Dobson was diagnosed with ALS in 2000 at age 50. He lived with ALS for 15 years. The book is available on Amazon and Audible dot com. Listening...
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