Firstly I want to thank you all in advance for taking the time and effort to read this post I know time and effort are so incredibly valuable to PALS/CALS.
I have taken the time to read the sticky’s and understand that I fall into the lowest possible risk group.
To make this short I have...
My Mom will be 89 in November. She was always very busy, doing her own cooking, cleaning, etc. She got out with friends a couple of times each week. She was just diagnosed in July with Bulbar ALS and is having trouble speaking clearly. Is there anyone out there who was diagnosed at this later...
25, no health conditions besides pretty bad allergies
Recently, I've had trouble swallowing food and it feels my throat is very tight and I also when I take deep breaths I experience slight wheezing as I exhale. It's also a bit harder for me to swallow my saliva too which I'm concerned about...
HELLO every one i want to thank every one who take his time and read this .
my name is Najib I'm 28 years from morocco "north Africa" . we found recently that my father has ALS after a year of suffering between doctors and tests . you cant imaging how devastating was that to me and to my family...
My wife (PALS) and I are concerned that I as primary CALS although in good health may have a Medical or other emergency where I I cannot contact anyone. My wife does use her iPhone but is unable to speak clearly.
I suspect there are iPhone Apps or necklace gadgets that can be set up to do this...
Hi everyone,
I'm seeking some advice on some serious health issues I've been experiencing for the last 7 months.
I started having twitches in my arms which over a period of time spread to my whole body including my tongue. Weakness in my right hand/ big thumb, after some time I started having...
Hello. I'm a 25 year old male having some strange symptoms, and of course.... dr. google has now lead me here. Before I get into this, I have seen my GP for these issues, and was referred to a movement specialist neurologist. The problem is the appointment isn't until November. Keep in mind I...
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Hi Everyone -
I’m a 30yr old male (USA) and have relatively had good health my entire life. About 8 months ago I was suffering some symptoms that were thought to be Lyme/MS related and after testing, I was negative for both and given a bill of clean health from my Neurologist.
Fast forward to...
Hi guys,
My name is Julia, I have not been diagnosed with ALS, but have had these symptoms.
In Late April I started having clumsiness and heaviness in my legs where it felt like I had elephant feet. Initially I had some numbness from my chin to my knees ( I know this is not a typical symptoms...
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babinski's
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symptoms of als
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i tried to contact elysium directly, by now no answer...
does anybody have info what is going on with it?
copied:
The Orphan Drug Designation submission included data from a 2017 double-blind placebo-controlled European pilot study in humans. To expand on the results of the pilot study...