I was diagnosed Wed before Thanksgiving 2017!
I went to Mayo believing I had NPH (normal Pressure Hydrocepheous) I had been to 4 local Neurologist and all felt it was NPH, but because Spinal Tap and draining 40 CC of spinal fluid didn't help, we ere playing "stump the doctor" EMGs on Legs were...
advice
age
back
balance
bed
brain
chair
diagnosis
falling
fals
father
healing
lift
neurologist
newly diagnosed
pls
pressure
radicava
ramp
riluzole
sleep
social security
surgery
symptoms
walker
wheelchair
Godbless everyone on here.I rebuke all ALS in Jesus name by the power of the Holy Spirit and asked God to please pour out healing on everyone dealing with this horrible disease.My heart and prayers go out to everyone on here.....
Long story short my grandfather died of ALS when I was 10 and...
So, I am not here for twitching. I never suspected ALS until my PT mentioned needing to see neurology/ortho for a muscle biopsy.
I tore my gastrocnemius in May. It is not healing. Not responding to PT. I have lost an inch of muscle mass in the last 5 weeks in that calf. I was told...
While I haven't posted recently, I have followed many of the threads. All of the posts are so beneficial and at the same time overwhelming. Anyway after another 8 weeks, I'd like to give an update on our situation. The summer heat and my slow healing foot has kept me from overworking and...
It was my PALS funeral and burial yesterday. My sister-in-law and I worked together to plan the service. My PALS was half Jewish (I was raised Catholic) but he was agnostic. His sister and I worked out a compromise to make the memorial follow tradition without being overly religious. The...
I have a fissure from a bad bout of constipation that isn't healing and I am now scheduled for surgery. The surgeon wants to use general anesthesia. Have any fellow PALS had any experience with general anesthesia and suggestions?
The surgeon also suggested that I might want to do a colostomy...
I don't know where to turn. I have been grieving for 5 years now. The day my husband of 25 years was handed a death sentence with a diagnoses of bulbular onset als. My life has forever changed. I cannot function without medication. He passed away less that a year after diagnoses. It hurts just...
I'm writing because I've frequented these forums in the past few months. I've read all the stickies, searched past posts, etc. I'm consumed with worry.
Last spring, I bent wrong getting a toy for my son and something shifted in my back. I couldn't feel my leg for 3 months, and I had weakness...
back
brain
clean emg
cramping
diagnosis
early
emg
healing
magnesium
muscle
neurologist
night
second opinion
tests
treatments
twitching
video
vitamin d
weakness
worry
wrong
I have been pretty much paralyzed from fear ever since these symptoms started showing up and I could really use an opinion. I know this is very long and rambling, you will roll your eyes since my symptoms appear due to injury, not disease, but please hear me out. I cannot get the thought of...
allergies
als
anxiety
atrophy
brain
eyes
fear
flu
go away
headaches
healing
heart
ignore
knee pain
marijuana
mistake
movement
mri
muscle
muscles
night
pain
paralyzed
shoulder
spasms
symptoms
work
wrong