headaches

Hello, I'm a 22 year old male from Canada with no family history of ALS. I have a second or third cousin with MS, but other than that, no family history of any MND of any kind. In addition, I'm 99% sure I have nothing to worry about and I've got a doctor's appointment in 4 days just to be safe...

The experts and the different websites that we read will all tell us that the malfunctioning motor neurons and subsequent muscle wasting is not painful. And while technically this is true it is also misleading. As in my experience ALS is very painful. Physically - We go through excruciating...

Does anyone else get awful headaches? Mine are starting at any time now. They used to start when I was just waking up, but now they can begin at any time.

For a long time I have been getting headaches related to Co2 issue, my ALS nurse will have my BiPap setting adjusted when I ask and they go away for a short time only to return in 4-6 weeks as apparently my breathing declines. I have noticed that when my breathing is labored, and the headaches...

Hey everyone :) I keep telling myself that I worry far too much but I thought I'd post something here just to see what others think. Since around February I've been experiencing a rather large range of symptoms, some of which can be attributed to ALD/MND and some of them that aren't as closely...

3 years ago I started with bad headaches, vision problems, and my legs would twitch every now and then. Then a couple of months later my joints began to hurt in both my hands......I noticed every now and then i would skip a breath and would take deep breath to compensate. Now my muscles on...

Hello, It has been a long time since I have posted in this forum, and I can't find my old thread so I started a new one. I'm sorry. I have been twitching everywhere for over a year now. Started in legs, now everywhere. I don't have true weakness, but often fatigue very easily. I get headaches...

Two weeks ago I emailed and asked my ALS nurse to call me. When she did I told her that my headaches had returned and that doing even the smallest things left me out of breath and exhausted. I had been to the clinic two weeks prior to our phone call. She recommended that we once again have my...

Hi I was initially diagnosed with mnd but as I was presenting with purely lower motor neurone symptoms my neuro felt there was a possibility of MMN. I have had a partial initial treatment of Ivig, they only got 3 of the 5 doses into to me as I had an allergic reaction and felt quite ill even...

Hi everyone, I'm a 21 yr old male about 3 weeks ago I had a weird pressure on top of my head I was scared of having a brain tumor and I went to see the doctor they said they were tension headaches. About a week later I started having muscle twitches all over my body legs,arms,face,shoulders...