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  1. KimT

    Dental Issues

    After a very uncomfortable and painful dental appointment to replace a 40-year old crown today, I decided I need to write another ALS information sheet for dentists. The ALS Awareness Paper would probably not get read and it doesn't really address dentistry and ALS. When I went for a cleaning...
  2. A

    Falling apart - a bit of a rant

    It's been a rough couple of days and I am really struggling. I need to vent a bit, and I feel like this is the only place where anyone will actually understand. I had to call an ambulance to take my PALS to hospital on Friday night. He's been constipated on and off for a couple of weeks and we...
  3. T

    Undetermined Symptoms for Over a Year

    Hello to All. Thank You for allowing me to express my concerns and worries. My post will be long, but feel I need to explain, as best I can. I am a 62-year-old female. To list some of my medical issues may be of help: Crohn's/Colitis which is currently in remission; Fibromyalgia; Raynard's...
  4. D

    What could it be besides ALS?

    Hello everyone. Before I begin I'd like to apologize in advance for potential grammar mistakes because english is not my mother tongue. I'm here because of my friend who has been suffering from symptoms which are very similar to the symptoms of ALS for about a year now. I'll try to describe it...
  5. E

    ALS Survey - Please Take!

    Hello! My name is Emma Courtney and I am a Junior at Walnut Hills High School in Cincinnati, Ohio. This year, I am enrolled in AP Research, a year-long course that concludes in a final research paper, comprising of both research and our own investigation into a topic, that is used as the exam...
  6. J

    Biphasic Cuirass Ventiliation by Hayek Medical -- anyone have experience with this?

    I wanted to check this out, as my husband uses the Trilogy 24/7 and experiences many discomforts due to the pressurized air being forced into his nose or mouth. Makes him congested and sneezy, which is an issue because he can't clear secretions easily. It's way worse when the humidifier is not...
  7. C

    dealing

    So, it has been 4 days since my dad passed. The pain comes in waves. I know that he is finally healed, but I miss him terribly. Please don't get me wrong, I don't miss the shell he was left with.... I miss my best friend. His death was horrible. I would like to say it was peaceful, however...
  8. L

    Mom diagnosed 3 days ago with ALS. Great aunt died 2 years ago from ALS. I feel lost

    I'll just jump right in... 4 years ago my great aunt was diagnosed with ALS. She passed 2 years ago at the age of 76. Last year my mom (50 years old now) had a TIA stroke which was followed by a lot of problems the doctors couldn't figure out, including she can't lift her arms up to her shoulder...
  9. T

    New on Site

    Hello I have been reading several threads on the site since my friend was diagnosed with ALS 5 months ago. First I want to say this site has been a wealth of information and I am grateful for all here who answer questions. I was hoping to get some information on the Bipap vs the trilogy. My...
  10. J

    Friend with als. . Ideas for family gift?

    Our friend is not doing well, we would like to do something as a group for him, his wife and two children. Does anyone have any ideas they would be willing to share?
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