Hi all,
My partner was diagnosed w. ALS in February (2018). He might have noticed the first signs in Oct. 2017 in his right foot.
He got a leg brace for drop foot. His right arm/had and foot/leg are very weak. Now he has significant pain in his right wrist. I got him a brace and it's best if...
Hi all,
I've had widespread twitching for quite a while but know by now that twitching is non-specific. Some other symptoms have come up however that have been causing me more concern. Some of my muscles, including obliques (both sides), calf muscles and foot arch have been feeling 'crampy', so...
Dear All
As some of you know, I lost my Dad to ALS four years ago in August 2014 and have struggled with both grief and health anxiety as a result.
The health anxiety was terrible after my Dad passed, and it manifested itself in lots of "twitching" which was diagnosed as BFS from...
I apologize for the length of this post but I hope it might help others who have to take their PALS to the ER.
We were in the hospital from Thursday morning until noon on Saturday. As I have posted previously the trip to the ER was recommended by our health care nurse based on a false oxygen...
Hi all,
I'm 43years old and father of 3. I usually carry around my 2 year old son but this summer I found that my left arm just could not cope more then a few minutes when I usually can carry my son without any problems. I then fractured a finger on my left hand and had a cast for 2 weeks. When...
I’ve read the sticky note that said that this is not a progressive sensory disease. I felt immediate calm when I read that. But then personal experiences of people with ALS seem in line with what I am experiencing.
For about 10 days I have experienced sudden muscle weakness. I am still a 5/5...
Has anyone out there been prescribed these? If so, what is or has been your experience with them? Do they help or are they too cumbersome?
I currently have AFOs, but the therapist says I should consider the KAFOs due to weakness/instability in my upper legs.
Good morning all, terribly sorry to bother. For about 3 months now I’ve been experiencing twitching mainly in my legs but more focused on my calves. As the months went on I now get them in my foot, thigh, face, tongue, arm, and basically anywhere. This alone was a bit concerning as good ol...
Hello,
First off, I had been lurking here for about a year now and read the sticky note and that is why I haven’t posted anything yet. My thoughts and prayers are with you all who have this disease! My situation is a little different and would love for you some advice. Even if you told me to...
Hello everyone, I Am brand new to this forum but I would like to take a minute to say thank you all so much for what you are doing to provide support for PALS, CALS and people like myself who are seeking knowledge and peace of mind. I cannot say that I understand all that you're going through...
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