Hi, My father in law Age -73 years diagnosed with Bulbar symptoms in March 2018. He was feeling slight dragging of foot and speech issue for more than a year, but after several doctors visits he was adviced for some voice exercises with reason of 'sound box issue due to age' but after more...
Hi everyone, I am a 30 yr old who has been having some worrying symptoms for the last 5-6 months. I have been to my GP who referred me to a neurologist, and I have an appointment in a couple of months. I post hoping that someone has some input on my symptoms, and to see if they sound familiar to...
It's late, can't sleep. Just rambing, trying to put some thoughts in order.
I can't believe it's been 4 months since Ferd died. It feels like I haven't seen him in forever, like it's been so much longer. And then I think it's only been 4 months, that's why this still feels so raw.
I'm back at...
HI everyone,
Just joined the forum about a week ago. my wife was diagnosed with MND about 4 weeks ago . If there are any Indians on this forum do let me know. also if anybody could answer a couple of my questions
1. my wife can swallow food but has trouble swallowing water and small tablets...
I have been very worried about AlS for the past month and a half. I just turned 20 years old this month and I am a male.
It all started when I went to take a picture with my friends and noticed whenever I smile a certain way my cheeks would shake/twitch very fast and then it would proceed to...
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Hello again! My symptoms with right hand and right leg weakness are kind of the same, nothing worse, nothing better. What intrigues me is that for three weeks now I have had a lump in my throat feeling and mild dysphagia (feeling food is stuck in my throat and I...
Hi! I have bulbar onset and have started to have real problems with spillage onto my clothes when I eat or drink (mostly when I drink.). Paper towels don’t cut it anymore. Does anyone know how to make or purchase a coverup or bib? Thank you!
My weight has been steadily dropping, and I was re-assessed by the nutritionist regarding my tube supplementation. I was supplementing about one carton per day, and she said she wanted me to gain 10-20 lbs, and changed my prescription to 4.5 cartons per day. Part of the reason for the massive...
Really worried about potential ALS symptoms. I do deal with a lot of anxiety and obviously getting on google never really seems to help. Going to try and lay down a time line of how things have progressed over the past few months:
Jan 2017- was having trouble with food getting caught in throat...
Firstly I want to thank you all in advance for taking the time and effort to read this post I know time and effort are so incredibly valuable to PALS/CALS.
I have taken the time to read the sticky’s and understand that I fall into the lowest possible risk group.
To make this short I have...