fingers

  1. C

    Swallowing issues and muscle tiredness

    Hi! I am a 31 year old woman who has been experiencing twitching and muscle tiredness for a while now. It started with some strange symptoms after the birth of my youngest son 4,5 years ago (vertigo, paresthesia, raynauds muscle tiredness and swallowing issues). They found a positive ANA and...
  2. Kristina1

    when a limb falls asleep

    Just wondering what others do when a limb/body part that you can't move much (or at all) falls asleep. Right now I'm thinking of my hand, which I previously would have opened and closed, wiggled fingers, and shaken out until the pins and needles went away. Right now I can only clumsily, slowly...
  3. H

    Help on Trach

    Hi , my name is Jennifer and my mom is diagnosed as ALS last year(8/2017). Recently, her pulmonary doctor recommended my mom for the trach due to using 24 hours of trilogy. i am also researching about it but couldnt find the answer or opinion that that my mom has after she gets trach (Note: She...
  4. L

    14 years of symptoms (and now scared)

    Hi , male 34 years old, italian (milan). first of all: 1) sorry for my bad english (I will try to help myself with google translate, anyway you will find many errors in writing in English, sorry) 2) I dont want to be annoying for any of you, I understand very well your sufferings and respect u...
  5. R

    Update

    Sorry to open a new thread, but nothing else seems to help. I know you told me to go to a doctor, but I physically have not had the time, and I'm going to another country for a few weeks soon. I still get back pain and my back is very sore. The muscles of my neck and shoulders also feel sore...
  6. D

    Worrying about ALS

    Hello, I am 29 years old female. Lately i am experiencing severe generalized muscle weakness (left side is a little bit weaker), muscle cramps and muscle pain throughout my body, profound overall weakness and diffuse muscle twitching and they are slowly worsening. I need your opinion about my...
  7. D

    Sore in mind and body

    Hi all Firstly, you are all incredible and the way you put up with the clinically anxious is astounding. I have over the last two years had significant health challenges, since developing severe Sepsis, which resulted in kidney and respiratory failure. Since that time I have undoubtedly...
  8. J

    Well, that didn't go as planned...

    DH had his long awaited (3 months) wheelchair mods done yesterday. He got elbow blocks and arm supports, lateral supports, and a new headrest. He is not happy with most of them. Says they restrict his movement too much. He says he wants me to take them all off and go back to what he had, but...
  9. B

    Revisiting the Neurologist

    To preface — I’ve read the READ FIRST posts, so I hope all details below are relevant. 29 year old, smoker for 8 years. About 3.5 years ago I noticed minor tightness in my throat that I payed no attention to at first. Over the course of time I became more aware of slightly labored breathing...
  10. R

    Constant Body Wide Muscle Twitching + Weakness in opening fist

    Hello, First of all thank you for taking your time to open this thread. I am indebted to all of you and I wish for your health ! Before three months, I noticed some small twitching on my foot & other parts of body. They were indeed small and didn't vibrate that much such that it becomes very...
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