I was diagnosed by a neurologist about 5 weeks ago after two EMGs and MRIs confirmed his suspicions. I'm not sure how long I've had this as I was in treatment for Lymphoma in 2014 and never fully recovered from Chemotherapy. Now that I have done some research, I think I was passing off some...
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Quick question on female catheters: I know internal catheters are a no-no typically because of UTI risks. Has anyone ever used a Purewick external catheter? My PALs is in the hospital and they are letting her try one. Is this viable for ALS patients home use?
Hello All. I’ve thought long and hard before posting this as I’m very much aware of the daily struggles a lot of you here face. I am however finding myself on this site more and more frequently and feel untill I have my questions answered from people with real life experiences - only then will I...
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Hello everyone, I just want to start off by saying that I know only a doctor can diagnose me with anything. I have also read the stickies and have a few questions about hypoflexia. I realize no one can diagnosis me with anything but a doctor. Like, what is it exactly and how is it diagnosed? And...
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I had hoped that I would be able to report back with some kind of diagnosis, but unfortunately I still do not have one. Timeline since my last post:
-went to a podiatrist. Has a foot MRI which showed all sorts of things such as tendinopathy, mucoid degeneration, joint effusions, tenosynovitis...
First, I want to thank anyone that takes the time to read this post. I have started to develop weird symptoms that I cannot explain and they are causing severe worry. Background information: 24 year old female, decently active, used to play competitive sports.
So, the symptoms started roughly 2...
At a huge physicians convention at a swanky convention center after the meeting it was an open bar.
A female doctor and a male doctor struck up a conversation, enjoyable and with both having several drinks, the conversation eventually turned intimate.
Late into the evening they decided to go...
Hi! I have been a lurker here for awhile now and decided it is time for me to post. Please do not be afraid to tell me I am crazy or that I don't have a reason being here, but I wanted to address my worries. I know you all are battling, know or have lost someone with this terrible disease, and...
Hi there ,
I am new to this site because I would like some information and thoughts . I am a 23 year old female from Australia (I know from researching statistics the likeliness of me having ALS/MND is very unlikely). My story begins a year and a half ago. I had very strange flu like symptoms...
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Hi all,
First of all I would like to say sorry for posting this in here. Just don’t have many people to talk to and would like some helpful information.
I am a 21 year old female. My mother was diagnosed with ALS in 2013 she was 52 years old. I was mums primary caregiver. It all started in...
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