father

Hello to everybody, I haven't post in this forum for almost 3 years, but I still fight with my symptoms. To remind you my family situation, I am male, 42 years old. I have lost two uncles in the age of nearly 50 from ALS. They were brothers from my mother's side. Also her father(my grandfather)...

7 1/2 years its been now. from a slight tingle in her left foot to total paralysis took roughly 2 years. very slow decline since then, really where do you decline to? her breathing is compromised, but O2 levels stay up with nightly use of the bi-pap. If it was just us, I'd probably suck it...

Hello everyone, I 'm french, my father died of als in 2015, he had done genetic testing but the results went after his death and then nobody told us anything. We all assume that it was sporadic. Then, in 2016 my sister went under a IVF procedure and needed the results, bingo: c9orf72. At this...

Hi, My father in law Age -73 years diagnosed with Bulbar symptoms in March 2018. He was feeling slight dragging of foot and speech issue for more than a year, but after several doctors visits he was adviced for some voice exercises with reason of 'sound box issue due to age' but after more...

…a belief held by differing cultures across time. *”the concept that an essential part of an individual's identity or the stream of consciousness continues to manifest after the death of the physical body… *The essential aspect of the individual that lives on after death may be some partial...

Hi everyone, I am a 30 yr old who has been having some worrying symptoms for the last 5-6 months. I have been to my GP who referred me to a neurologist, and I have an appointment in a couple of months. I post hoping that someone has some input on my symptoms, and to see if they sound familiar to...

My father has been suffering from upper motor neuron signs over the past three years, with no apparent lower involvement (clean EMG and still no fasciculations), which led doctors to think of PLS. In a second EMG, the results are indicative of "mononeuritis multiplex or motor radiculopathy", but...

In February I noticed my right knee started to hurt after exercising in pool. Just sitting on a noodle and peddling it like a bicycle (same as I had been doing for last year). I also continued walking on a treadmill for 10 minutes (1/2 mile) each morning, sometimes on a slight incline to get...

Hi everyone, This is my first post. My father was diagnosed with ALS at the end of June. He is 73-years-old, and the whole family has been in shock because nobody had any clue something this devastating was going on with his health. This was truly a shock to the system. Of course, we are still...

Tomorrow, will be one year since my husband passed. This days are hitting me so hard because I am reliving in my mind the nightmare. He was agonizing for almost 10 days and we couldn't help. Then I lost my father to cancer and my dog the same day in April.... I am so scared all the time, I have...