father

  1. E

    Speech Therapy for PLS

    Hello, My father was diagnosed with PLS a few months ago and has been experienced symptoms for more than 2 years. I wanted to ask you all about experiences with speech therapy. My father's speech is unaffected yet and his lung function and breathing are perfect as by the latest tests, done...
  2. P

    Looking advice on diagnosis

    Hello dear people, First and foremost I have to say that I have utmost respect for everyone who replies to the posts of us health worriers - this forum has helped me immensely when looking for information about this terrible illness. My story is this, I am 28 years old male, I have got a PhD...
  3. E

    New Sympton: Trembling when Yawning

    Hello, My father was diagnosed with PLS a few months ago, after 2 years of symptoms. He still has no lower motor neuron involvement, since he has no fasciculations, muscle wasting, or weakness. However, he recently has been experienced a new symptom: when he yawns, his right arm trembles very...
  4. N

    My daddy died in his sleep, at home

    And I wasn't there. I spent two months in Poland with him from August to mid October, and then had to come back to the US to work and to bring my kids back to their dad. My father begged me not to leave. He prayed for a quick death, and he prayed for an easy death. At least those two prayers...
  5. B

    Constant use of Bipap machine

    Hi Everyone, Haven’t posted in about a year. My father was diagnosed approx 18 months ago with ALS and he is in the final stages. He has trouble holding up his head, can barely walk on his own, not eating anymore on his own and getting all his nutrients from a feeding tube. Just this week his...
  6. B

    Potential ALS Diagnosis

    Hello all! I'm posting about my Mother-in-law who has received a potential diagnosis of ALS, but is being sent to a specialist here in Atlanta to confirm. It started in June with back pain/trouble walking and a very slight slurred speech. I'm not sure everyone would have noticed her speech at...
  7. C

    Worried and confused

    Firstly, I want you guys to know I appreciate you taking the time to read my story. I am a 37 year old male, father of a two year old and I am very concerned about the probability of having a bulbar ALS diagnosis. Symptoms and dates: 1st week July 2018: buzzing in brain for 10 second...
  8. K

    Just want your support...

    You’re all going to think I’m crazy..I know. I promise I’m not chasing this disease. I just want support through my journey. I just want to ask if I could hang around here with all of you, I love all of you. Your stories inspire me and talking to you all makes me feel so much less pain. It helps...
  9. D

    Communicate with Dr & Advice

    Hello All, First of I would like to say thank you for opening this forum to people like myself that dont know whats going on with us and are scared sh-less. I think its great that your open to helping both people with ALS and those that are not yet diagnosed or that are just suffering from...
  10. R

    Update

    Sorry to open a new thread, but nothing else seems to help. I know you told me to go to a doctor, but I physically have not had the time, and I'm going to another country for a few weeks soon. I still get back pain and my back is very sore. The muscles of my neck and shoulders also feel sore...
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