father

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    Seeking Permobil F3 Wheelchair

    Hello, I am hoping to find a used Permobil F3 or F5 wheelchair for my father soon. His current wheelchair does not have a tilt or rise feature which he will soon need. I live in Oklahoma, but am able to travel for pickup. I saw that soonerwife was selling one a few months ago, but I'm...
  2. E

    Riluzole and Weakness

    My father has started taking Riluzole for PLS. He has noticed increased weakness (for instance, he used to be able to stand up easily and now he has a lot of trouble standing alone from the couch). Is this normal? Do you think it might be a result of the disease? It started quite abruptly since...
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    My story

    Hello, I want to share with you our story in full. There are bits and pieces all over the forum, but I wanted to gather everything together. My father received a final diagnosis of MND yesterday. My father (60) started experiencing symptoms quite a while ago, around the winter of 2016. He...
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    Unsure how to approach symptoms

    Hello guys, I need some help here. I'll try to keep this as short as possible and before I start I will say that I've read the sticky. I'm a 25 year old male and for the last 11+ months I've been experiencing some really awful symptoms that (with some direction from my GP) has pointed me in the...
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    Probable ALS - no diagnosis

    First off, I want to thank you all so much for the invaluable wisdom so many of you have shared here. You have helped so many (including me) through this disorienting process, and I really can’t thank you enough. This is my first time posting, and I feel like I have nowhere else to turn. My...
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    My sister and I have the same symptoms at the same time after my father was diagnosed

    Hello everyone, I am from Vietnam. My father 63 years old, was diagnosed ALS 4 months ago. Unfortunately I (33) have symptoms same with my father: such as muscle twitching, feel weak and numb at left hand and leg for 2 months. I think about genetics and I had visited some hospital in Vietnam...
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    help

    hello every one my name is Najib and i have father who been diagnosed with ALS 6 month ago and i want to get more info if that possible. with ALS my dad has been diagnosed with hypothyroidism and need an urgent Surgery to totally removal of the thyroid gland . but his doc said he cant do any...
  8. Nuts

    Matt is gone

    We set my darling husband, Matt, free today. He made me promise to do it, but he clung to life even when life offered him nothing but pain. He was a fighter to the end. He was comfortable, and he did not appear distressed--but he was stronger than anyone imagined. He was surrounded by his...
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    Left arm weakness

    Hi all, I'm 43years old and father of 3. I usually carry around my 2 year old son but this summer I found that my left arm just could not cope more then a few minutes when I usually can carry my son without any problems. I then fractured a finger on my left hand and had a cast for 2 weeks. When...
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    Speech Therapy for PLS

    I posted this on the general forum, but thought it was more appropiate for this site... Hello, My father was diagnosed with PLS a few months ago and has been experienced symptoms for more than 2 years. I wanted to ask you all about experiences with speech therapy. My father's speech is...
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