Mod note to future readers: Corwin's diagnosis was reversed and he was told not ALS. Please see his post on 2/16/2017
Yesterday I went to als clinic in Istanbul, Tyrkey and was diagnosed after 5 minutes exam and 2 hours EMG with bulbar Als. Doc thinks atypical because of the sensory symptoms...
Sabby
Thanks to the extreme helpful Moderators like Nikkie, Lourie,Mike
Request to nIkkie to merge this new thread with my old one last posted 26/02/2016
My neurological problem is now 14 months old , still fasciculation in wholebody going on
Now The fasciculation persists for several hours...
Hi all, Question of the week. Curious to understand if the rate and frequency of fasciculations depicts the speed of progression or not? When cuddling with my PALS, it is amazing the speed and constant pinging all over felt. I understand these are the motor neurons firing off as they attempt...
Hi! I'm Sophie and I have fibromyalgia and benign fasciculation syndrome. I also have finger muscle weakness due to an unknown cause, (emg next week.) I also have generalizrd anxiety disorder which disturbs my life quite a lot. I thought that since I have given many tips how to reduce anxiety, I...
I'm a 17 years old boy living in Indonesia where motor neuron diseases are quite rare. But I have some symptoms that concern me of having ALS, and they're quite bothering me in enjoying my peaceful life.
It started on June, this year. When I was using my computer, my right pinky finger suddenly...
First and foremost I want to say to all of you that have this dreaded disease I am so sorry. It is awful and I hate to even come here amongst you who are going through so much to ask these questions.
Second, I am fortunate in that I am the CEO of a relatively large hospital so I have access to...
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I've been experiencing slurred speech for about a year. In Mar I saw a neurologist and in April I had a speech eval and emg that were normal. In July my neuro saw tongue fasciculation and ordered genetic testing, which showed variant on ALS2 gene. In august I repeated the speech and was...
To everyone who contributes to this site, thank you. I have spent many hours reading as I'm v worried and awaiting blood test results and an EMG. Your post to read before worrying is most helpful and had sustained me until recently.
My symptoms began nine months ago when I started waking up at...
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My symptoms go back About 1.5 years ago and never was scared up until 1.5 months ago. Some things may not even be related to eachother but I always add the just Incase it's a missing puzzle piece. The beginning symptoms seems much more tolerable then where I am as of today.
Almost 2 years ago I...
My neurologist said worst case scenario...ALS. I've been seeing doctors for years for an ongoing problem with my left arm. 2 yrs ago I developed bilateral bicep tendinitis. A year later frozen shoulder in right arm. Then numbness & tingling every night when I sleep. None of which are ALS...
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