family

Hi, really looking for ideas about what is going on with my mum. It’s along and complicated story so I’ll try to keep it brief! She’s never been the most healthy of adults. She had a heart attack in her late 40’s, drank too much alcohol and smoked and got little in the way of exercise. She...

Hi all. Just checking in. Nov. 4th was the 4 month anniversary of Dave's passing. I miss him every single day, but, I will admit ....... less so as time goes by. I think of him, or of phrases he would say, or things I knew he would want to talk about, multiple times per day. I have conversations...

My pals began a new behavior last week. She has been dealing with a lot of losses - speech, ability to swallow food, choking on pheglm etc. and started sleeping more and more. Sleeps 11 hours at night. Gets up and tries to drink a little coffee, goes to bathroom then gets back in bed. Family...

:grin: Hi, There Friendly People! I know I'm a bit slow about posting :roll: because I'm working on the "Family Memoir". HOWEVER, I'll try to post "spiritual funnies" when I can. *Just because people are "spiritual" doesn't mean they don't like jokes. They just have to be ones we can show...

Hi all, https://www.alsforums.com/forum/do-i-have-als-als/41467-clean-clinical-exam-now-gait-abnormality.html Above is a link to my story till about May/June 2018. I have no idea what’s wrong with me, so I’m posting here looking for direction. I have seen multiple neurologists about my...

I was personally very grateful to see a camp offerred to the minor children and grandchildren of PALS. As a CALS I was overwhelmed with gratitude when I saw the notice. Just wonderful, I thought, I wept and sent the notice on to my daughters in law who might want to participate with our...

I have been having unusual symptoms since a couple of weeks after the birth of my third child in April although things seem to have really progressed since late July. ALS only really appeared on my radar about 3 weeks ago when I felt my speech was changing. I have copied my main concerns below...

This may be slightly off-topic and if so, please bear with me. It is a result of my diagnosis/symptoms, and I don't know of a more knowledgeable or supportive community to ask: I was diagnosed about 13 months ago, with lower extremity onset. I can still walk with difficulty, but see progressing...

1 Month Warning. That's what I just gave the family, via the private family FB page. One month of no quality, coherent time with Matt and we will be taking him off the vent. He was clear headed about a week ago just long enough to tell me that crazy communication doesn't count, so when he's...

My problems started all 3 months ago. Everything was fine before. After some extensive jogging, my calfs felt stiff. Ok, thats maybe normal, i thought. But it didn`t disappear. Also, i mentioned twitching on both sides. After doing some more sports in the next two weeks, twitching was more...