family

I haven't posted in a while so I wanted to update. One of the main reasons I haven't been on here is... I'm writing a book! Or trying to. It has nothing to do with ALS or anything autobiographical. It's a scifi/fantasy romance. I've long been an avid fantasy reader, and always had stories of...

How exciting! 365 blank spaces on a new calendar. *Take a few moments just to sit and look at it. *Enjoy the possibilities. *Anticipate good things that may happen: experiencing the warmth of sunshine; the scent of rain; the sparkle of snow; beauty of spring and summer flower; jokes and...

:-P Salutations, greetings and hello! 2019! A new calendar of 365 days! May hope; faith; joy; love; hugs; kisses; birthdays; special moments; sunshine; rain when needed; visits with family and friends; jokes and laughter; quiet meditation; peaceful rest; fun outings; moments in the sun...

First off, thanks to everyone on these forums. I have been visiting a bit as I'm quite convinced my girlfriend of 10 years has developed this terrible disease. A year ago today we were on our snowmobiles in northern Maine... it seems impossible that we are where we are right now. Sharon...

Hello, people!!! I'm so sorry for bothering you all and taking your precious time.. One day(it's became my dream lately..) I want to discover a cure for this awful, terrible disease... I'm a tall(1.85 m), white, 14 year old boy living in Europe. Recently I've noticed muscle twitches mainly in...

First, I want to thank everyone that takes time out of their day to help people in this forum. After doing a lot of research and reading on this forum I have decided to post a thread, seeking help. The truth is that in the past few weeks all I can think about is ALS. As time goes on the more...

Hello everyone...I hope everyone is having a good Christmas season. I wish I could say the same. It's been almost 6 months since I have been here. Some things have gotten better and some a lot worse/terrifying. I was hoping to never have to come back here but my situation has dictated I do...

Hello, and Merry Christmas! I am writing to ask you a question about the daily chores. My father has retired about a year ago and has been suffering from PLS for 3 years. Since then, he spends most mornings doing chores: aside from showering himself and getting dressed, he cooks for the family...

Hello, first I just want to say thank you for reading this and for those who are affected with “A” y’all are brave souls and I pray for y’all. I didn’t wanna post on here because I felt like i didn’t need to but I feel like I’m losing my life. I’ve recently lost my job, almost my relationship...

Hi, yes I was doing better. Now, I’m so worried about the financial security of our family. Before this, we had a plan for retirement, college, etc. My husband earns almost twice what I make. How are we going to survive when he can’t work? And, how will we make it once he is gone? He has life...