familial

  1. B

    I'm so scared.

    Let me start by saying this scared feeling doesn't come from a place of randomness. My dad has ALS. I am 32 years old and in august, my back tweaked while at work (just walking). Three days later, I had an ulnar nerve issue which left two fingers numb for 4 weeks. Since then, I have...
  2. kellykago

    Definite Diagnosis

    I received my official diagnosis of ALS on 12/16/16. I knew in my mind that I had it, but was continuing to hope and pray for an alternate diagnosis. I've had some minor progression in my speech articulation and some vocal quality (raspy) changes in addition to EMG findings on my tongue and...
  3. F

    Mother died of ALS in March....now I have foot drop

    Hi All, This is my first time writing about ALS in any support forum ever. My mother died of ALS this past March. I was able to get through my mother's battle with ALS with the support of friends and family. But now that I am exhibiting suspicious neurological problems, just half a year after...
  4. J

    Resources for genetic testing

    Hello all, My name is Josh. And there's familial a lesson my family. My mom is diagnosed with it. My grandmother died from it. My great grandfather died from it. And my great great grandfather died from it though on his birth certificate it says creeping paralysis. My mom also has a cousin that...
  5. MrCrumbs

    Wife recently diagnosed with familial ALS

    Well, I don't exactly know where to begin... So, for the sake of filling up this white box i'm typing in, I sum up where we are at today. My wife, 32, and I, 33, had our first child just shy of a year ago. I work from home and she decided to be a stay at home mom. It all started back in May...
  6. L

    Possible familial ALS?

    Hello, First I apologize if I'm posting in the wrong section I am new to this site. I am posting in hopes of getting some opinions from those who have ALS or are wondering themselves. My grandmother passed away from the disease In 2001. From what I have read familial is rare but it is...
  7. T

    Familial ALS, am I next?

    My mother died of ALS 11 years ago. She was told then that she did not have FALS, since there is no other history in our family. 2 months ago my sister was diagnosed with ALS. I’m still in shock and can’t believe this is happening to our family again. Two days after I found out about my...
  8. M

    Dad passed from ALS, Mum and Sister have MS

    Hi ALL, This is my first post here and my first on an ALS forum. Ok will start with a quick family run down. * Mum mid 50's diagnosed with progressive MS in her early 30's. Still hanging in there now but is in the very later stages of this cruel disease. Bed ridden round the clock care, and...
  9. D

    Familial ALS research

    We have a long history of ALS in our family, dating back at least 4 generations (losses include my mother, grandfather, great grandfather, and many distant relatives). I was surprised to know that my family didn't have much documentation or research to pass along to me when I was diagnosed. My...
  10. M

    Familial ALS? Scared from symptoms.

    Hello, I'm a 35 yr old female. My dad was diagnosed with ALS when he was 33 - and he passed away at 36. My dad had a cousin who also died of ALS, but I know nothing beyond that. I've recently seen a neurologist, due to being referred to one by an Ortho doc, after some strange symptoms. I'm...
Back
Top