familial

  1. N

    Inherited ALS

    My paternal Grandmother died from ALS when she was about 59. Her son was also diagnosed with ALS in his seventies but died from a stroke. My dad died at 83 with some form of dementia. My brother died last year from ALS at 60. As far as I know there has not been any genetic testing because of the...
    • NMPR
    • Thread
    • als brother burning children cost cramping dad death dementia diagnosed familial fatigue genetic genetic testing muscle neurologist scared sleep stiffness stroke testing
    • Replies: 9
    • Forum: Familial ALS (FALS)
  2. P

    Is this ALS? Or can ALS improve?

    Hello I have some health problems for 5 months now and it is destroying me. And I have some questions for you to clarify what docs could not. It started with twitching in legs mostly in thighs and calfs but it became widespread. Next I started felling a weakness after some sport activities. Like...
    • Peter999
    • Thread
    • als als? cure diabetes emg familial fasciculation health hope improvement is this als is this als? meds pain person with als problems questions stress symptoms twitching weakness worry
    • Replies: 4
    • Forum: Could this be ALS?
  3. M

    "Concerned" update

    In january (i believe) I posted on this forum after experiencing twitching in my legs for a few months. I had done a lot of "research", reading, and self-diagnosing. My grandmother died of ALS in the 80's. And so familial was within my radar. However, it would take a month for me to even see a...
    • mommyof2boys
    • Thread
    • als bfs brain caregivers children concerned diagnosed diagnosis eating emg familial family family history goodbye heart life neurologist reading research symptoms tests tongue trip twitching update weakness worry
    • Replies: 2
    • Forum: Could this be ALS?
  4. J

    This Disease is Familial in my family and I have the gene

    Hi there My grandfather (70) , his sister(49), his two sons (65) (one being my father at 48) all died from MND. His other son, and daughter died from FTD I had the expansion dna test, and I have the gene that causes MND, and given 80-90% odds of getting this. My two sisters are on the slow but...
  5. H

    Familial Versus Sporadic

    Hello, Thank you for allowing me in your group. My sister was diagnosed in 12-12-13, she passed 5-4-15. There are 7 children total, a brother died at 22 months unrelated to ALS, all in relatively good health. My mother is adopted. Both parents 86, still living and in relatively good health. My...
    • hawk11
    • Thread
    • als als? brother bulbar bulbar onset children clinic diagnosed diagnosis familial ftd health ignore increase neurologist onset sporadic symptoms twitching work
    • Replies: 2
    • Forum: Could this be ALS?
  6. Ed340hp

    Tirasemtiv Update - Final

    I finished the Tirasemtiv Clinical Trial. Two weeks open label, to test reactions. 48 weeks double-blind trial. An extra two weeks due to scheduling. My breathing numbers have not dropped for the past 24 weeks, and my leg and arm strength improved over the past 18 weeks (slightly). My small...
    • Ed340hp
    • Thread
    • ability arm atrophy breathing clinical clinical trial communication death familial fatigue fda foot hope ice pain paralysis progression research sporadic symptoms test treatment trial update wheelchair
    • Replies: 18
    • Forum: Research and trials
  7. M

    Now questioning my neuro problems...

    Hi all. I am a young female who has been having on going neuro problems which now seem to be getting worse. I presented to my neurologist a few years back with spastic parapasesis. They were concerned as I was told my neuro exam was very abnormal. I have spasticity and weakness, muscle wasting...
    • mummy24
    • Thread
    • advocate als atrophy back clonus cramps denial diagnosis emg emg? falling familial familial als female genetic getting a diagnosis health mri muscle neurologist problems tests twitching weakness young
    • Replies: 15
    • Forum: Could this be ALS?
  8. S

    Our Terrible Story

    My wife has Bulbar ALS, diagnosed since Oct. 2016. Some background prior to her diagnosis is necessary to get context: My wife, myself, and our now 19 yo daughter moved from RI to FL to care for my 91 year old Dad in July 2013. We moved in with him. He was very demanding and...
    • soakland
    • Thread
    • als angry bed bipolar bulbar caregiver caregiving christian clinic dad diagnosis disability familial father friend grinder hope meals pressure sale slurred speech speech story symptoms treatment wanted worry
    • Replies: 11
    • Forum: Current caregivers
  9. G

    Tired. Scared.

    Good evening. Against the advice of those close to me, I really needed to do this. Before I begin, I did very closely read the main page on this forum and have very much taken into consideration its instruction. I take this very seriously as far as being a "DIHALS" person but can only think that...
    • Giddytown
    • Thread
    • advice als? am i just crazy? autoimmune brain bulbar bulbar onset burning children choke choking depression diagnosis dihals early eye eyes familial food movement muscles onset scared stress swallowing swallowing issues symptom symptoms tests twitching weakness
    • Replies: 4
    • Forum: Could this be ALS?
  10. D

    Als and FTD

    My husband has been diagnosed with FTD and a few months later we received a diagnosis from Barnes in St. Louis that he has familial ALS. His dad died 20 years ago with this horrific disease , and his sister died in 2014 of ALS. My husband has the repeated gene C9orf72 gene which links ALS and...
    • Dlightle
    • Thread
    • als als and ftd back children dad diagnosed diagnosis exhaustion familial familial als ftd hope night social security stop working travel
    • Replies: 14
    • Forum: Newly diagnosed
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