Hello all--
First and foremost I would like to commend everyone who has contributed to this site. I have been reading since the new year but haven't had the courage to create an account until now.
I am very impressed at the outpouring of support and love that I've read in many threads.
I...
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My wife has bulbar onset an can't speak and has swallowing problems. She lost use of her right hand (her writing hand) about 6 months ago. She had been able to walk slowly until recently when she started falling on a regular basis. Her falls have resulted in broken wrist, compression fractures...
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Slow but relentless progression of PLS
Submitted by mrs70 on Fri, 03/10/2017 - 15:26
Hi, I just found this site today and am glad to have found you.
I was diagnosed with PLS in 1998. So, I have been living with it a long time. It's been slow, but...
Hi all. I am a young female who has been having on going neuro problems which now seem to be getting worse. I presented to my neurologist a few years back with spastic parapasesis. They were concerned as I was told my neuro exam was very abnormal. I have spasticity and weakness, muscle wasting...
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Hello,
I'm sorry to be posting and taking up your valuable time. I have read the sticky however have a number of ongoing symptoms I am very concerned about. Apologies for the long post but I wanted to explain the situation from the beginning.
This all started after I had my daughter in...
Hi I don't want to take up to much of anyones time here...but I have a question. I am 48 year old active woman...I have been experiencing Leg /calf cramps at night and steady left eye twitching...and sometimes I feel difficultly swallowing..not when I am eating...just like my throat feels...
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In May 2016, after a series of falls and visits to many doctors, my mother was diagnosed with ALS. I've been lurking here, scared to come out and say anything, touched by so many stories here and by the support you all offer one another. I have benefitted indirectly when I was feeling quite...
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For the last week I am unable to sleep very much because even with my Bipap on I cant get breath lying down. My Bipap is adjusted to the "highest" setting according to the therapist.
I do have an adjustable bed but have never been a person who can sleep sitting up or on my back. So I have it...
My fvc drops 25% when I lay down and I can't keep myself from falling over sideways (no matter how many bolsters) when propped up. I considered a medical bed, but after several nights in hospital falling to side, I finally got an electric Lazyboy instead. It has been such a godsend. I got one...
I read the "Do I have ALS Forum" and I have some symptoms but not all.
The worse symptom is shortness of breath when lying down, there are times where I feel like I am about to pass out for no other reason than lying down or sitting.
Next is night sweats every night even though I keep my...