falling

  1. B

    Waiting for EMG

    Hello, I am posting regarding my 62 year old husband, who is a newly-retired law enforcement officer. About five months ago, Dale noticed that he was losing weight without trying. His caloric intake was high. The weight kept falling off and our Primary Care doctor became concerned and...
  2. S

    Have twitching throughout body and fear I have ALS.

    I'm a 46 year old male and for quite a while now I've had random jerky movements in my body. Kind if like how you jerk when you are falling asleep, but during the day too. Had this for a few years. A toe will jerk, a few minutes later a finger or hand or other body part. Last week I started...
  3. P

    Just been diagnosed by two ALS specialists

    I have just been diagnosed by two ALS specialists at OHSU and Providence. Am academic shrink not sure if that is helpful. Don't have any upper motor neuron signs (bilateral babinski, bilateral hoffman and jaw jerk WNL) and have normal reflexes except for brisk knee reflex which I have always...
  4. J

    Tell me I am being irrational!

    Hi All. I need some advice. I am 40 a 40 year old woman. About 8-9 years ago I developed body wide twitching which led me to google of course and then sent me in a horrible spiral of anxiety/depression for roughly a year.I had all kinds of perceived this and that. I went to my gp who eventually...
  5. Kristina1

    in person support groups

    Sorry in advance that this is long. I had Clinic today, and it so happened that at the same time as my visit the local ALS association support group was going on (they meet in the conference room at my ALS Clinic). Since there was a delay between seeing pulmonary and waiting for neuro they...
  6. S

    First I don't think I have ALS--just need opinions and resources

    I'm 32/female. This all started when I was 15 and has slowly, very, very slowly eaten away at my body. I do not think I have ALS. This is way too slow. My problem areas are all on left side of my body, except for my toes. I haven't been able to wiggle or bend my toes on either foot for about 10...
  7. L

    Zoning out

    Hi all, My PALS insists on driving. He has been and continues to. Its when we go on a family trip that I actually see first hand how he is doing. I have to say there is no swerving and he is slow, constant and safe basically. However, the other day he insisted on driving my girls and a...
  8. L

    Update - 2nd Abnormal EMG

    Hi folks, I did try go back and post in my original thread (took some searching) but its been closed. Decided to give an update and ask some questions, if I may. Maybe someone was following my story Anyway, I've since been to my second neurologist, a neuromuscular specialist in Manhattan (at a...
  9. tripete

    Equipment Recomendations

    As things progress more and more gadgets are needed. I have lost most of my muscle control to hold in bowel movements or to push them out. Is there a Portable Bidet that people use when out? If so please recommend one. I have lost a lot of my trunk and neck strength and end up leaning/falling...
  10. O

    Twitching pinkie muscle

    Hi everybody, I will keep it short as I have written here before. I have had some twitching trough body (still have a little bit), arm tingling and falling asleep troubles for a few years. Now it seems to have stopped like 6 months ago. But there is something new which worries me a lot. 7...
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