eyes

My sister was diagnosed with ALS 4/2015. She is at the end and I need to know the signs and what to look for. I need to know how much more time I have left with her. She is currently on a bipap machine, she cannot breath on her own anymore. That has been since August 2017. Monday her chest was...

My husband decide to restart Pimozide nearly a month ago at the lowest dose. The side effects are still present (extreme fatigue, slurred speech, and excess saliva), however, at his last ALSFR appointment, he had not progressed at all. My husband is an extremely slow professor, but he has always...

My young grandson called the other day to wish me Happy Birthday. He asked me how old I was, and I told him 72. My grandson was quiet for a moment, and then he asked, "Did you start at 1?" I was in the bathroom, putting on my makeup, under the watchful eyes of my granddaughter, as I'd done...

Recently I've been experiencing some strange eye issues and I'm just wondering if this is ALS related or if this is something else altogether. I will get a semicircle of triangular prisms in my eyes. It's only happened a handful of times so far and it only lasts for 15 to 30 minutes. I haven't...

Hello, my name is Andrei, 17 years old. I am from Romania, Bucharest. I am very scared about my symptoms. So, 6 months ago I felt a burning sensation in my right biceps. After 2 weeks, everything stopped. After a while (maybe 10 days of peace) I start having muscle twitches in my feet for 2-3...

Hello Everyone, I hope this is in the correct forum. My dad was recently ( 1/4/18 ) diagnosed with ALS at University of Utah. My mother and I are most likely in denial, however, something just does not seem right from all of the research we have done. I would like to have some insight from...

Hi everyone First of all thank you all for keeping this alive with so much info available. This forum is one of the most empathic and caring ones I’ve ever seen. My prayers go to the ones who have been diagnosed and to their caretakers. I am apologizing for this post in advance, I know there...

Every day seems more like "Ground Hogs Day". My son and I have been caring for our PALS since September 2011. The first few years were not bad. He still could talk, walk, and eat. As the disease progressed, he decided on a feeding peg tube and much later, a ventilator. He is paralyzed...

The Black Bra (as told by a woman) I had lunch with 2 of my unmarried friends. One is engaged, one is a mistress, and I have been married for 20+ years. We were chatting about our relationships and decided to amaze our men by greeting them at the door wearing a black bra, stiletto heels and...

It's been 7 weeks since my mom passed away . My parents apartment has been emptied and keys have been returned. People and agencies have been notified, and death certificates picked up. Time slowly starts to go back to the pre symptom, pre Dr visits, pre ALS days. And I miss her. I know she's...