equipment

  1. S

    Equipment

    Finally the VA signed the POs for the power wheel chair and an assistive speech device. Supposedly the assistive speech device has been sent. I emailed the vendor on the wheel chair to find out how long it is going to take and got no response as of yet. I'm wondering if it was a co-incidence...
  2. tripete

    How Did the Progression Occur

    I am curious on how different PALS progression occurred? My breathing muscles have been the first to go. At first I noticed difficulty breathing at times when I should not have had problems. For example I was an avid runner and I began to notice that at relatively short distances I was loosing...
    • tripete
    • Thread
    • ability balance bed breathing bulbar burning choking cold cramps diagnosis driving early equipment fatigue fell finger heart hope muscle burning muscles pain planning problems progression sleep stupid thumb
    • Replies: 19
    • Forum: General discussion about ALS/MND
  3. K

    Gently Used ALS Equipment for Sale

    I would like to sell the following equipment which was gently used by my family member: Philips Respironics Cough Assist Device 70T with power cord, instruction manual, carrying case and two new (in package) CA 70 series circuits, adult Lg., 6 ft. Asking $550. Tobii Dynavox I-12 communicator...
    • kksrnks16
    • Thread
    • als arm back battery cough assist dynavox equipment equipment for sale family family member foot for sale information lift patient lift permobil power power chair power wheelchair roho sale shower sling suction support van wheelchair
    • Replies: 3
    • Forum: Used ALS equipment for sale
  4. zoohouse

    It has been a while

    It has been over 2 months since I last visited the forum and I see that we have lost so many more of our dear warriors. I was having some difficulty with the losses, and then my own body gave out on me. I have been Tim's sole care giver since he was diagnosed in 2012, but have been blessed...
    • zoohouse
    • Thread
    • abdomen age arm back breathing clothes cost diagnosed early equipment family fingers free hours kids meals movement muscles nausea night pain palliative care shoulder stroke van ventilator vomiting wrists
    • Replies: 14
    • Forum: General discussion about ALS/MND
  5. N

    ramblings afterward ... Toby's gone

    It’s been two weeks since my husband Toby's, battle with ALS ended on June 2, in the afternoon with a respiratory therapist, RN, Chaplin, Social Worker, various other team members from Hospice, his three grown sons, my sister, and our main caretaker Kay all in attendance in our home - where he...
    • NeedCourage
    • Thread
    • afterward als back bed bipap book caregiver death decline equipment grief helpful hospice life love medical ramp respiratory toby wanted
    • Replies: 14
    • Forum: In memory of
  6. S

    Now What?

    It hasn't even been 2 weeks yet. Still expect to See Liz when I wake up. The Kids are doing Ok considering the situation. I have the spare room packed full of all the Medical equipment that had been in the Living room. And the Hospital Bed is still in our Bedroom. I need to get these things back...
  7. P

    suggestions, recommendations appreciated

    we are behind in getting equipment for als / paralysis. i spent the first two years of this, researching and trying experimental treatments. my wife and i went to Thailand for 7 weeks chasing stuff. drove out to Colorado, spent 7 weeks there, chasing stem cell. my body continued losing...
    • patoyeah
    • Thread
    • als bedridden cell equipment helpful manual medicare paralysis paralyzed power power chair stem cell treatments wheelchair
    • Replies: 17
    • Forum: General discussion about ALS/MND
  8. Nuts

    Clinic and Diabetes Update

    Whew, this disease never slows down, does it? the next installment in the saga of rising blood sugars has Matt's glucose levels rising overnight. The Endo asked for 3am readings, and we've learned that his numbers drop very very low and then rise, which means his body is eating itself, so to...
    • Nuts
    • Thread
    • back breathing chair clinic diabetes driving eating equipment falling finger fingers foot hours lead lunasin meds pain symptoms technology test trial trilogy update
    • Replies: 11
    • Forum: Current caregivers
  9. B

    Equipment to assist sitting up in bed

    Dear all, I am still in early months and i have limb onset with very weak arms and hands. I have a double bed and am reluctant to trade in for a single hospital bed in which i won't be able to freely roll over. But i am coming closer to being unable to raise my torso up to rise in the morning...
  10. Janis J

    second BiPAP mask

    My husband has started using BiPAP during the day. His full-face mask works well at night but we want a smaller mask to use when he's awake. A rep at the company that supplies his BiPAP equipment claims that Medicare will only cover one type of mask, and that their system will only handle one...
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