Hello, I am in the process of going through everything I have. I am donating a lot of stuff to my local ALS chapter but there are several pieces of equipment that I am trying to sell to recover some medical/funeral costs from.
Hoyer Lift,
Quantum Edge chair
T70 Cough assist
nice reclyning...
Having a bad chest cold since last Sunday, getting woren out.
Finally dug out the vest from the closet where it's been for last 8 months, cause I didn't need it.
A rep came and re schooled us on how to use it and now twice a day vibrating to break it up in my chest.
Just another piece of useful...
My wife was recently diagnosed with ALS and we still want to travel while we can. For many years we have done volunteer work with several groups that live in our RVs wherever the job is. We have done probably 80 jobs and we would still like to be with those friends.
Our current trailer is...
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The nurse that came for the initial evaluation was super nice and explained how my mom would get all the equipment she was already using, plus what ever she needs to be comfortable including a low air loss mattress. I was so relived. She also said they have a team who specialize or have...
I am here at the one in LA for work (last day, open 11-4 today at the Convention Center) and thought I would just remind everyone that they are free, go on in multiple cities every year and are a good way to see adaptive equipment, local dealers and resources available in one place.
Best,
Laurie
I wanted to thank everyone here, past and present. With Mom's diagnosis last Thursday and her first clinic day today, my mind and emotions have been in a whirlwind. I've probably spent 6 of the last 7 days worth of time on these boards. There is so much wisdom here to catch me every time...
Dear all,
My name is Kay and I'm based in London. I am not an ALS sufferer but I found out about this disease by Anthony Carbajal's campaign to raise awareness about it. Most watch and even participate in the ALS ice bucket challenge but didn't take the time to actually understand the gravity of...
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Hello all,
This is my first post, but I have been lurking for a while, soaking up all the information I can process. Let me tell you, I have learned more on this forum than all other venues available, and I thank you all.
My husband started with foot drop in 2011, then fasciculations and...
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We all know how expensive this disease is and how it can devastate one financially. I thought it would be good to start a thread of tips for dealing with the money issues of this disease.
I know when I first suspected I had ALS, I needed to decide whether I would take my pension in a lump sum...
I would like to share my mother’s story with you in the hopes that I can receive advice regarding my family’s situation. This might seem like a very ‘dry’ explanation of the situation, but I assure you that there are a lot of emotions involved
My aim is to give the clearest and most objective...
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