To begin with, I have seen a neuro. I have diagnosed IIH (high intracranial pressure) and already had a follow up appointment where I mentioned these new symptoms. I am awaiting CPK levels.
About 1 week ago my lip froze. I couldn't move it - it was just my upper lip and it drooped down and...
I think I'm officially graduating from "we're making the most of it while we can" to "Yep, this really, really sucks".
It's been a tough few months, with five ER visits and two hospital stays, three cases of pneumonia and one of the flue. No Matt, when you stop choking on every bite or sip it...
back
bed
burning
choking
decline
diet
eating
food
headache
hours
muscles
night
pain
pneumonia
problem
progression
reading
research
shaking
sleep
stupid
venting
worry
Hi
im 41 years old, and my grandfarther is dead because of als. he dead when he was about 70 and it startet with the speak and eating.
I have the last 2 weeks had muscel tonus and tendernes and the feeling that both arms where sleeping aswell. alle the symptoms are bilateral (bothsides and are...
We are four years in---why had I not heard of silent aspiration before today?
Between November and January, hubby went through three rounds of pneumonia and one case of flue. It's been tough, but he's doing better.
He was explaining to the Speech Therapist that he went through weeks of...
I'll spare you most of the details, but twitching started in late November 2015. Started in left calf but rapidly progressed to all over (more in lower body though). Twitching has pretty steadily gotten worse over two years - more new twitches have come than old twitches have gone.
I'm 42. I...
My ALS doctor and others with ALS recommend getting feeding tube while I am still healthy. I was orignaly against it, but am now considering.
I have now problem eating now (I weigh 285) and still have 85% lung capacity.
What is your opinion? They said it doesn't have to be used until...
For approx 4 months I have had increasing problems eating. Manipulating food around my mouth is hard work and I am frequently biting my tongue or mouth. Dry food eg bread is sometimes too difficult to swallow. My voice is slurring, also because I cannot seem to put my tongue in the right...
Hello everyone. Before I begin I'd like to apologize in advance for potential grammar mistakes because english is not my mother tongue.
I'm here because of my friend who has been suffering from symptoms which are very similar to the symptoms of ALS for about a year now. I'll try to describe it...
als
als?
atrophy
back
breathing
death
diagnosis
eating
feeding
feeding tube
feeling weak
friend
go away
life
lift
mnd
shoulder
sleep
swallowing
symptoms
symptoms of als
tests
tongue
weakness
worried
Hi
First i would let you know english is not my first language.
I read a lot of your post like everyday everytime and i totally support you.
My story is
1- in septemver i had a lots of burning calves and when i watched at them i can saw and feel the fasciculations only in them for 1 month.I...
abdomen
arm
atrophy
back
bulbar
bulbar onset
burning
crying
eating
emg
fasciculations
food
mucus
muscle
nose
onset
scared
story
support
symptoms
test
tongue
wrong
I am at wits end. I can no longer brush my teeth or rinse out my mouth. I can munch ice and suction out the residual toothpaste. I am not eating anything bu mouth but can't stand the taste of saliva. What do PALS do?