eating

  1. E

    Lip tremors tired tongue

    To begin with, I have seen a neuro. I have diagnosed IIH (high intracranial pressure) and already had a follow up appointment where I mentioned these new symptoms. I am awaiting CPK levels. About 1 week ago my lip froze. I couldn't move it - it was just my upper lip and it drooped down and...
  2. Nuts

    Venting tomorrow---which will surely cause more venting

    I think I'm officially graduating from "we're making the most of it while we can" to "Yep, this really, really sucks". It's been a tough few months, with five ER visits and two hospital stays, three cases of pneumonia and one of the flue. No Matt, when you stop choking on every bite or sip it...
  3. F

    can this symptoms be ALS

    Hi im 41 years old, and my grandfarther is dead because of als. he dead when he was about 70 and it startet with the speak and eating. I have the last 2 weeks had muscel tonus and tendernes and the feeling that both arms where sleeping aswell. alle the symptoms are bilateral (bothsides and are...
  4. Nuts

    Silent Aspiration

    We are four years in---why had I not heard of silent aspiration before today? Between November and January, hubby went through three rounds of pneumonia and one case of flue. It's been tough, but he's doing better. He was explaining to the Speech Therapist that he went through weeks of...
  5. M

    Update and query

    I'll spare you most of the details, but twitching started in late November 2015. Started in left calf but rapidly progressed to all over (more in lower body though). Twitching has pretty steadily gotten worse over two years - more new twitches have come than old twitches have gone. I'm 42. I...
  6. R

    Should I get feeding tube now?

    My ALS doctor and others with ALS recommend getting feeding tube while I am still healthy. I was orignaly against it, but am now considering. I have now problem eating now (I weigh 285) and still have 85% lung capacity. What is your opinion? They said it doesn't have to be used until...
  7. P

    No diagnosis just Tongue biting / eating problem

    For approx 4 months I have had increasing problems eating. Manipulating food around my mouth is hard work and I am frequently biting my tongue or mouth. Dry food eg bread is sometimes too difficult to swallow. My voice is slurring, also because I cannot seem to put my tongue in the right...
  8. D

    What could it be besides ALS?

    Hello everyone. Before I begin I'd like to apologize in advance for potential grammar mistakes because english is not my mother tongue. I'm here because of my friend who has been suffering from symptoms which are very similar to the symptoms of ALS for about a year now. I'll try to describe it...
  9. C

    s ared about bulbar onset

    Hi First i would let you know english is not my first language. I read a lot of your post like everyday everytime and i totally support you. My story is 1- in septemver i had a lots of burning calves and when i watched at them i can saw and feel the fasciculations only in them for 1 month.I...
  10. K

    Dental hygiene

    I am at wits end. I can no longer brush my teeth or rinse out my mouth. I can munch ice and suction out the residual toothpaste. I am not eating anything bu mouth but can't stand the taste of saliva. What do PALS do?
Back
Top