eating

  1. C

    Please share your experience at ALS clinic - very frustrated!

    Hi all! We’ve only been to our ALS clinic once to meet neurologist and clinic nurse which was two weeks ago. During the visit we inquired about a couple trials my Dad may be interested in as well as treatments Riluzole and Edaravone. The Neurologist and Nurse said they could give us no advise...
    • Cherise77
    • Thread
    • advice als als clinic clinic confused crying cure dad eating edaravone frustrated hope neurologist problem progression questions riluzole supplements symptoms treatments vent vitamins
    • Replies: 13
    • Forum: Newly diagnosed
  2. Kristina1

    need support, laryngospasm

    I need to share this with people who know what im going through. I am very shaken up after worst laryngospasm to-date last night. I have been getting them over the past year, and this one was ten times worse than any ive had before. I went to breathe in and hit a rock solid wall. I tried to...
  3. N

    [25/m] Left side body fatigue / Left side of body tremors

    Hello. I'm a 25 year old male having some strange symptoms, and of course.... dr. google has now lead me here. Before I get into this, I have seen my GP for these issues, and was referred to a movement specialist neurologist. The problem is the appointment isn't until November. Keep in mind I...
    • nick1224
    • Thread
    • arm back balance early eating fatigue finger fingers food foot health lead leg pain lift mucus muscles neurologist pain problem stiffness swallowing symptoms tremor trouble swallowing worried
    • Replies: 5
    • Forum: Could this be ALS?
  4. M

    Bulbar als?

    Reading through this forum I do feel a bit silly posting this, but thank you for anyone taking out any time to respond, it means more than you know. For about a month and a half I've been having issues swallowing. I swallow, and the food stops like partway down my throat, or at least some of it...
    • Mnh26
    • Thread
    • age als als? anxiety back bulbar bulbar als choking confused coughing dihals eating family family history food ice morale reading saliva scared speech stupid swallowing swallowing issues symptoms tongue twitching
    • Replies: 1
    • Forum: Could this be ALS?
  5. C

    I finally figured out my diagnosis, AND...

    I have struggled with seeing many different symptoms pop up over the course of 3 years. From difficulting eating to twitching calves muscles to twitching tongue. I tried everything and nothing work. I had an EMG, and was about to go in for an MRI. But I figure it out beforehand, AND.... I don't...
    • crinzema
    • Thread
    • als diagnosis eating emg fear mri muscles story stress symptoms tongue twitching vacation wanted work worry
    • Replies: 3
    • Forum: Could this be ALS?
  6. L

    Symptoms, awaiting neuro appointment

    Hello all! I have been having some strange symptoms for the last month. It all came about suddenly and I’m concerned. All started May 29th, ceased for 10 days then symptoms arose again. Symptoms: - involuntary thumb and middle finger twitch/movement (this lasted for a week and hasn’t...
    • Lonestar91
    • Thread
    • als arm atrophy back coughing cramps eating emg falling fasciculations finger fingers ice movement mucus night problems saliva shaking shortness of breath swallowing symptoms thenar thumb trouble swallowing twitch twitching weakness work worried wrist
    • Replies: 6
    • Forum: Could this be ALS?
  7. T

    Sporadic or familial?

    Hello, I have fasciculations, all over the body, for about a year, I became aware when the diagnosis of als of my father took place. No other family members are affected yet. After 6 months of fasciculation I had an emg, result: fasciculations, and units a little wide in the interosseous dorsal...
    • Towel
    • Thread
    • als diagnosis eating emg familial family fasciculations father sporadic swelling symptoms
    • Replies: 2
    • Forum: Could this be ALS?
  8. H

    Questions about a tracheostomy

    I just wanted to ask any users here how it is to have a tracheostomy. I have a feeding tube and while it is a massive improvement to choking, it is a big commitment. The tube site needs to be managed and there are going to be complications (Granulation tissue, pain, leakage and infectsions)...
  9. S

    Protandim

    I'm an "old one" in this ALS world. I've been living with this crazy disease now for over 11 years. It all started in 2007 with my left foot while speed walking my neighborhood. It stayed in my lower limbs until about 2013ish, but now I'm just getting to the point I can not type well, feed...
  10. B

    Transitioning

    For 3 years my wife has fought with everything she has to make ALS take things from her. Anything that could help make life easier was pushed to the side until it was the only option left. Her PWC sat as a dust collector for seven months, although for the last month, she was being pushed around...
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