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Hello everyone...I hope everyone is having a good Christmas season. I wish I could say the same. It's been almost 6 months since I have been here. Some things have gotten better and some a lot worse/terrifying. I was hoping to never have to come back here but my situation has dictated I do...

Hi everybody. I am man 29. My story started a year ago. Something around 01.18 I started to feel strange feeling in upper side of my right feet. It is difficult to describe. Like sock was tight (without sock). I visited doctor, he recommended me antidepressants, (I took them until Spring...

Hi, first of all - thanks in advance for spending some of your precious your time reading my long story. I'm 25 and last 3 months of my life was the worst (so far) , fear-ridden time I have ever experienced. Everything started on the 1st of October with a constant, mild headache with painful...

The ALS Clinic and some places on this forum indicates not to lose weight. One of the first symptoms I noticed was that I was losing a little weight, but was gaining around the middle. It seemed to me that this was the result of atrophy and I conveyed those thoughts to my first neurologist and...

This is important not just for advancing SOD1 tx, but establishing another case where a smaller firm (where a lot of ALS work is being done) has successfully handed off a therapy to a larger firm. This helps incentivize ALS research. ---- [Adapted from Seeking Alpha] Having seen positive...

Hey, im an 18 years old boy, who has been having for about a month painless muscle fasciculations pretty much all over my body especially on my arms and legs, and i've been worried sick this could be an early symptom of ALS. I've already been to the GP, and he told me it is very unlikely i would...

Hello everyone - Let me start by saying you all have been excellent in guiding the users here. You approach each person with respect and understanding and bring great expertise from your own experiences. I have read the sticky notes and many other posts. My story - I am 47 years old male...

Hello Everyone, I would like to start off with saying that I have utmost respect to all of PALS and CALS who despite the illness did not forfeit and are fighting and living each day as happy as it's possible. I have lurked the board for 2 months (read ALL stickies) now and I've decided I...

This post is for those who are currently experiencing numbness and muscle twitching and, like me, tend to automatically assume the worst case scenario. I felt compelled to write this a year and a half after first experiencing neurological issues because #1, it seems that a lot of folks who...

First off, I want to thank you all so much for the invaluable wisdom so many of you have shared here. You have helped so many (including me) through this disorienting process, and I really can’t thank you enough. This is my first time posting, and I feel like I have nowhere else to turn. My...