drugs

  1. C

    He died & it was horrible.

    It's amazing how in the end, this grief really is about how I've lost the love of my life and not as much about the way I lost him or the tremendous amount of caregiving I did to keep him alive as long as possible. But...the way I lost him is not OK either and I think it's given me PTSD. He was...
    • CSElliott
    • Thread
    • advice bipap breathing bulbar bulbar als caregiver caregiving chair crying death drugs dying eyes family grief heart hope hospice hours life love sad sleep twitching wanted wrist
    • Replies: 22
    • Forum: In memory of
  2. K

    I'm fading away...Please help..

    Hey forum.. 38 year old male here from Canada.. I have been struggling with some not so nice symptoms since February 15, 2016. I will try my best not do give you an extremely long story, as I have noticed when people reach out for help it sometimes can lead to writing a novel, and I don't want...
    • Krfbmk
    • Thread
    • ability als als? back brain confused drugs early emg eye family finances lead neurologist onset please help pressure scared sleep stiffness story symptoms tests tremor vision worried about als wrong
    • Replies: 8
    • Forum: Could this be ALS?
  3. S

    Advice for brother newly diagnosed with ALS

    Hello all, my brother was diagnosed 2 weeks ago with ALS. He's 40 with a pregnant wife and a toddler. His diagnosis took about 15 months from first symptom - a fall. He now has a finger that doesn't work, an arm muscle that doesn't work, some weakness, twitches, and some spasticity. He also has...
    • SBHarley
    • Thread
    • age als arm cannabis clinic clinical crying diagnosis diet drugs early edaravone exercise food medicine muscle newly diagnosed onset pain power research stress support symptom symptoms twitches unsure weakness
    • Replies: 4
    • Forum: General discussion about ALS/MND
  4. G

    Getting drugs released prior to trials

    Have been following AB Science and their drug Masitinib. Just noticed today on their press release that the FDA are, and have , released this drug for compassionate use in ALS prior to clinical trials. Is this new? First time I have seen it and obviously that's exciting . Is it not time we all...
  5. KimT

    St. Margaret at Mercy Team Gleason House

    I talked to this facility today, explaining that I'm a PALS without a CALS. This might be an option for me when I lose my independence. The State discourages out-of-State residents being admitted if they are on Medicaid BUT if one has assets even to cover one year, residency will be...
  6. R

    Doctor states a potential for ALS

    Hi, I find myself here because honestly, I am unsure if the doctor I saw was really offering me any good information. Not to criticize the doctor I saw, just that he was not my PCP who is on vacation. I just visited my doctors practice and saw the on-call physician. Not my normal PCP. I...
    • Robious
    • Thread
    • advice age als anxiety arm balance cramps crying depression drugs exercise heart ice increase muscle muscle twitch muscles relative shaking speech swallowing swallowing issues symptoms test twitch twitches twitching unsure weakness worry
    • Replies: 5
    • Forum: Could this be ALS?
  7. R

    Acupuncture and TENS

    Hello, This is my first post. I was recently diagnosed with PLS with right spastic hemiparesis. I take Flexeril and Gabapentin, see a NeuroPT who gives me exercises, swim nearly every day, and have started taking easy yoga classes. I want to do everything I can to get in me the best shape...
  8. T

    without a diagnose

    Hi, Last August 2015 I experienced things happening in my spine and in March 2014 I was diagnosed with Dermyotomositis. I went into the hospital and had a rash and they treated for DM. Jan 2016 comes around being on sort of drugs but there was no conclusive evidence that I had DM. Normal blood...
    • Trevor49
    • Thread
    • als bed chair diagnose diagnosed drugs emg exercise family fell fingers muscles pressure pressure sores problems swallowing
    • Replies: 5
    • Forum: Could this be ALS?
  9. M

    Any effective treatment ?, help please!

    Hi, my name is Miguel, Im from mexico, my father was recently diagnosed with als in march of this year... Me and my family are very desperate because the disease has progressed very fast... he can almost walk and speak, he cant move his hands... and he is very depressed, just as we are.. He is...
    • Mrenteria96
    • Thread
    • als als cure depressed diagnosed drugs family father fear hope life medicine natural riluzole stem cells treatment work
    • Replies: 4
    • Forum: Newly diagnosed
  10. H

    Can ALS / FTD account for all these changes?

    My sister just left after a long visit, and I find myself just astonished at the changes in her over the last six months. She is much weaker and must use assistive aids to walk in the house or have someone support her if she walks outside, and after a mile or so of walking, foot drop kicks in...
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