My mom was recently diagnosed with ALS (1st opinion at Mayo and 2nd at Emory). She has bulbar onset and her limbs are still quite strong. Her pulmonary tests show severe weakness (<50%) and her ability to swallow is quite poor. She is having a feeding tube inserted next week at Mayo. She...
Alzheimer's research scandal?
Researchers from Swedish Karolinska institution may have found an all new pharmaceutical treatment for Alzheimer's disease, but the drug company Apodemus have been keeping results secret. An Alzheimer's treatment is worth billions, and researchers are threatened...
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AB Science announces positive top-line results of final analysis from study AB10015 of masitinib in amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease
Primary analysis is a success and confirms interim analysis
Company to host webcast on masitinib in ALS
AB Science SA...
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Hi there: My friend has been denied travel health insurance for a visit to the USA from Canada. London Drugs -recommended by the ALS society denied her. She is using a walker and CPAP assist. Does anyone know of an insurer I can approach? thanks
I wrote a while back about the laryngospasm I had the misfortune of experiencing and found there are other ALS patients that also suffer with this.
I've had 5 or 6 all total. None of which where as bad as the first. With the subsequent spasms I could at least get a little air in and they...
Hello,
I'm sorry to be posting here and taking up some of your valuable time reading my message. I'm concerned and very afraid that what I'm experiencing could be the first symptoms of ALS. My health scare saga began about six months ago, and I'll try to summarize it as briefly as possible...
als
back
brain
choking
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death
diagnosis
drugs
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fatigue
fingers
food
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swallowing
swallowing issues
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tests
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In the morning I get a lot of clear mucus which comes out of my nose. I have trouble blowing my nose because of weakness. We have a baby nose sucker-upper, but it's useless and doesn't work. So I had this bright idea that maybe I can use my saliva suction machine on my nose mucus. Is this a...
Hospice came yesterday and prescribed Atavan for anxiety and Ritalin to help with fatigue. I have not found any recent posts on either of these two drugs and was wondering if anyone is taking them. I'm interested to know if they help and if you experienced any side effects. Any comments would...
My husband was diagnosed in December 2013
Currently he is unable to walk and use his hands. Swallowing is being affected but he still talks well. Looking for a to get a cough assist or should I get a EMST 150? My husband is also on hospice and using methadone as his pain medicine. Does anyone...
Hey all did ya see that this act passed senate and now just need pres to sign.
What it means is a boat load of $$$ will be available for research and streamlining possible drugs that could help folks.
This is what we were advocating up in DC last spring for. So there's some good news. Love ya...