drugs

My mom was diagnosed in February 2018 with advanced ALS. She hasn't lost the ability to speak, move, eat or drink but is on oxygen and has hospice. Is it too late for any type of treatment or clinical trials/drugs?

Dear Sir or Madam. My daddy 57 years old. In November 2017, my loved daddy was diagnosed with amyotrophic lateral sclerosis (ALS disease or motor neuron disease). Bulbar shape in the initial stage. Symptoms: the blurred (smeared) speech, twitching of the muscles of the arms and shoulder girdle...

Do you have frequent muscle cramps? Have you been diagnosed with a motor neuron disease like Amyotrophic Lateral Sclerosis (ALS), Primary Lateral Sclerosis (PLS), or Progressive Muscular Atrophy (PMA)? If you’ve been diagnosed with motor neuron disease and meet the requirements listed below, you...

All articles talk about drugs and supplements to help with strength and twitching but nobody says what they are. I’m getting frustrated with trying to find what they are. Can someone please help me with this. Mod Note: email deleted. Plz send a Visitor Message if you wish to respond. Or...

Hi dears For about 8 months i have had weakness on my right arm but just in the mornings and when i am waking up it fades away. But beside it i have balance problem in my legs...it is hard to stand and walk. i am swaying and my legs are shaky and jelly.. 2 days ago i felt that my right leg is...

RCH4 revisited again I have been on the ALS drug RCH4 for the past 19 months and I am upset about the moderators comments which are most unfair to a charity who has provided both support and RCH4 free of charge worldwide for years. The moderator here, Laurie, has locked two previous threads...

I was just reading this market report & it makes mention of 3 drugs available on the market for ALS - Radicava, Riluzole & another called Neuronata-R. I've never heard of that one before & it looks to be a Chinese Stem Cell therapy? I wonder why it made it into this report... Amyotrophic...

SO I never thought I would say “Great! Brian has appendicitis!” But after a harrowing week I am saying that exactly. Brian started Radi this week and they gave him Prednidone with that to prevent allergic reactions. The Dr thought his rapid escalation of weakness this week was a reaction to...

Have recently read two interesting research papers on Human Endogenous Retrovirus-K and TDP-43 and it's connection with HIV Neuropathology. It looks like drugs for different kinds of HIV Neuropathology are approved by FDA and can be used for ALS. Please, correct me if i'm wrong. Would appreciate...

My mom is down to drinking just one boost a day...sipping it slowly throughout the day. Does anyone know how long she can survive like this? She also had a half of a rootbeer today since she was craving that. But, no other liquids. She can barely swallow and is very weak. Also, meeting with...