My PALS has just been diagnosed and not had their first visit at the ALS clinic where they will meet with all of the specialists, occupational therapists etc. she had neck surgery 9 months ago and symptoms increased after that, she was diagnosed with locked shoulder and treated for that for well...
Hello -
I am a 38 year old male 6'0 173 lbs
Medication: Adderall, Zoloft, Kratom
I been noticing lately that I get very tired when walking up hills or stairs. After the second flight my thighs really start to burn. I am not out of shape but I also don't work out regularly.
I have about 2...
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Just got finished reading a chapter in this book ,about dealing with ALS. One sections says in order to drive and be covered ins. Company must be notified. Has anyone had a problem with this. I've never been told or heard of this , just did a 27 hr. Trip back from Florida to Ontario. Anyone have...
Hello, I have a question about my condition - I have quite a lot of fasciculations (thighs, calves, shoulders, hands, face, chest, back, little "feelable jolts" time to time on tongue, sometimes even inside of my ear - drum and sometimes I can see flickering in my eyes similar that I see...
Then lose it in the car!
My mom is in a nursing home I need to get her transferred to another ( not urgent, another story I just dislike the place muchly). Brian is progressing because ALS moves just one way as we know. Next up is more homecare hours, next up is the simple reality that this...
A woman for New York was driving through a remote part of Arizona when her car broke down.
An American Indian on horseback came along and offered her a ride to a nearby town.
She climbed up behind him on the horse and they rode off.
The ride was uneventful, except that every few minutes the...
My mother has ALS and has developed FTD. I read online that someone with FTD/ALS usually has the c9orf72 gene? And that gene is due to famillia? Please confirm because it is driving me nuts that I might get ALS in the future. No one else in my family has ALS and this past year I did not worry...
It's been a rough couple of days and I am really struggling. I need to vent a bit, and I feel like this is the only place where anyone will actually understand.
I had to call an ambulance to take my PALS to hospital on Friday night. He's been constipated on and off for a couple of weeks and we...
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Hi all,
As I was driving home today I went to raise my left fore arm to itch my nose, and it simply just wouldn’t move up that high. I obviously started freaking out and pulled over. This happened after a fairly intense workout and it is fine lifting above above my head or out to the side. I...
Hello guys, I’m new in here, hope yall doing fine. Well, first, my clinical history. I’ve just turned 22, no family history of als. I’ve been diagnosed with GAD when I was 12 and always been worried about having serious diseases, it started with brain tumors and stuff like that. Ive been on ssri...
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