disability

I went to the doctor with some mild concerns thinking I might have had a transient ischemic attack. I have high cholesterol. ALS had never crossed my mind. Doc did a neuro exam amd said, "I'm more concerned it might be ALS," and noted hypereflexia, changes in reflexes over time, and ataxia...

After going to a MDA clinic for 8 years I have been thinking about changing. My ALS Neurologist is top-notch, it's everything else that seems generic. Has anyone pulled off a change of clinics after so long? What did it entail? Would they accept my existing records (two 3 to 4 inch folders) or...

I would like some advice from those of you that are in-charge of your PALS children's SS disability monies and how you keep track of what it is spent on also what it can be used on. Thanks

Second opinion confirmed my suspicions of ALS today. It has been a long frustrating road at times. My situation was a little unique because of financial restraints and getting to the right kind of neurologist who specializes in neuromuscular disease. The wonderful and kind people in this...

Greetings; I will start by saying that I was pleased to find that some horror stories about the VA have not proven to be true for me.... I submitted my packet to the PVA on the 25th of April, VA in Fargo received packet on the 28th; my claim was approved on the 29th; (I guess my Neuro in...

To all PALS and CALS who have experienced shortfalls in the provision of DME and home health services (meaning, I suspect, all of us), you may be interested in knowing that these huge problems are not on the list of the ALS Association’s priorities for its “Advocacy Day and Public Policy...

Hubby was diagnosed with ALS in February. On March 8th we filed for disability benefits. We filed a fully developed claim including a DBQ from the neurologist who diagnosed him and all of the tests involved...both those indicating ALS and those ruling out other things. So today (yes, they...

PARIS, April 4, 2016 -- AB Science Announces Positive Interim Results from Phase 3 Trial of Masitinib in Amyotrophic Lateral Sclerosis (ALS) (also known as Lou Gehrig's disease) Company to Host Webcast on Masitinib in ALS in the Coming Days AB Science SA (NYSE Euronext - FR0010557264 - AB), a...

Hey, everyone! So much has changed for me in the last year--had to "retire" from my job of 27 years (I'm on disability--ugh!!!) and I've been trying to channel my energy into caring for my family. My kids are 21, 19, and 17 and don't NEED me like they did when they were children, but they...

My sister was just diagnosed with ALS in December, and a recent evaluation indicated that she is also probably in the early stages of frontotemporal dementia. She has worked in an academic position for some 35 years, but on Friday she was told that she was to begin disability leave immediately...