So I wanted to post this because I've been hearing about and reading about detoxing as a way to slow progression.
On the site healingals.org there are a number of stories of PALS who claim to have reversed als. I don't know how many of those have a validated dx, although I do know that after...
Hello again...
Nothing new from the dr's since we were last there 3/17 when they said my husband had pseudo bulbar palsy (although the report from that day says bulbar palsy and suspecting bulbar ALS)
EMG is scheduled for 4/21
The question I have is in regards to swallowing. My husbands diet...
Hello
My father was diagnosed with ALS in 2013. His symptoms were very subtle and started off with thumb numbness. When we tried everything from surgeries to physio-therapies we were still hoping that the numbness had something to do with stiffening of the nerves or muscles. I am from Nepal...
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My late husband passed away in 2007 at age 52. His father also had "probably als" and passed away in his fifties, so we are assuming it was familial ALS, although his father's diagnoses wasn't definite.
My son is a college student, age 19, and under a great deal of stress. He recently began...
Ok - i'll try to be as detailed as possible. I have also read the stickies, and still would like some advice/clarification
27 year old/Female. Symptoms started 2 years ago.
So - Dec 2013 symptoms started - Originally I had tingling, went to a urgent care was referred off to a neurologist who...
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Hello. I posted here sometime last year and unfortunately I'm back again. I'm copying my original post here so I don't have to retyoe it to give the background. The change since last year is that now we have another family member who has been diagnosed at age 63 with ALS. She is my grandmothers...
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Thank you so much for taking the time to read my post. I've been experiencing muscle twitches throughout my body since July of 2015, 7 months ago, starting mainly in my calf, although I also remember one night of persistent right bicep twitches in July. At that time I made the mistake of...
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There is an aquaintance of ours who is convinced that a specific diet high in the right saturated fats will eliminate my hubby's symptoms of ALS. She contacted me several times in the fall to tell me that if we just followed this diet he would literally regrow muscles within three months. But...
Greetings All, I am a 46 year old Black woman who was diagnosed with Progressive Bulbar Palsy in August 2015. (stressed my race because I haven't ran across many African Americans with this disease and I hope to raise awareness among my race)
My symptoms started slowly I noticed a slurr in...
My PALS was able to eat and drink without difficulty prior to last June when he was hospitalized for bilateral subdural hematomas from multiple falls.( He had a walker but refused to use it.) He had a very stormy hospital course and was hospitalized for 10 weeks and required intubation with...