diagnosis

Hi everyone, This is my second time posting. First time I had not been checked by a neuromuscular illness doctor yet. Meanwhile I got checked and this doctor identified the following symptoms with 1 year progression since onset: ✓ Generalized Hyperreflexia ✓ Generalized stiffness in 4 limbs ✓...

Hello all, I need opinions on some troublesome clinical findings plus emg results. As many of you know I have been seeing and following up with Neuromuscular specialists here in Florida for a few years now. While I still don't have any firm diagnosis I do have an abnormal clinical exam plus...

I wasn't sure if I would post this at all. After deciding I had no idea where to post it but, for me, it feels like a rant/complaint so here it is. Since my diagnosis I've always believed that I should take good care of my general health, get some good sun each day possible, get some light...

Hello, I want to share with you our story in full. There are bits and pieces all over the forum, but I wanted to gather everything together. My father received a final diagnosis of MND yesterday. My father (60) started experiencing symptoms quite a while ago, around the winter of 2016. He...

I’m a little over two years post diagnosis and was recently denied insurance coverage for a shower/commode chair. I am a federal employee and have been very happy with coverage thusfar (GEHA). As I prepare to appeal the denial, I’m wondering what others’ experiences have been with insurance...

Hi all, My partner was diagnosed w. ALS in February (2018). He might have noticed the first signs in Oct. 2017 in his right foot. He got a leg brace for drop foot. His right arm/had and foot/leg are very weak. Now he has significant pain in his right wrist. I got him a brace and it's best if...

This post is for those who are currently experiencing numbness and muscle twitching and, like me, tend to automatically assume the worst case scenario. I felt compelled to write this a year and a half after first experiencing neurological issues because #1, it seems that a lot of folks who...

First off, I want to thank you all so much for the invaluable wisdom so many of you have shared here. You have helped so many (including me) through this disorienting process, and I really can’t thank you enough. This is my first time posting, and I feel like I have nowhere else to turn. My...

My PALS has had her first 2 MDC's @ Mayo Clinic (FL) and Medicare has approved all associated claims except for her neurologist's charges. Naturally, these are the most expensive charges ($305). The procedure codes submitted by the Mayo are 99215 and 99354, with a diagnosis code of Z82.0. In...

*after writing this, I see I am just regergitating all the symptoms I have been having and it lead to a long post. My intention is to let you know what ALL is going on when we all know there is probably just specific symptoms that I am focusing on for this forum.* Thanks for reading this long...