diagnosis

My girlfriend was told that her symptoms are consistent with ALS a week ago at Mass General Hospital. As I stated in previous posts I have known for a while...and her dirty EMG sent us to Boston for the second opinion/confirmation. The first few days were spent crying/ holding her. She now...

My mom’s FVC was 50% during her initial respiratory evaluation at the ALS Clinic at Mayo. Because of this, she is not a candidate for any clinical trials. She will be receiving a cough assist and trilogy. Does her diminished pulmonary function indicate ALS progression is aggressive? She is...

Hi there, I've had daily, widespread muscle twitching for the past 5-6 years. I never thought anything about this and thus never even mentioned it to a doctor. Both of my calf muscles have been twitching more or less constantly for the past year (in addition to random twitches elsewhere in my...

Our journey began at a Joe Bonamassa concert in November of 2012. With no advance warning, Darcey was suddenly having difficulty walking. Later that same night, she'd be unable to rise from a seated position. It was the beginning of a life phase that neither of us anticipated. For all of...

Hi All, My dad was officially diagnosed with als in March 2018 although he was exhibiting signs as early as May 2017. I remember going to the neurologist for the diagnosis and my dad walked there. Slowly but he walked. Now he can barely walk in a walker. His left side is much stronger than his...

Thanks to anyone reading or replying to my thread. I have been lurking on here for a few months and have restrained myself from posting. Having witnessed the patience and compassion shown by the sites members and my growing concerns, I hope you don’t mind me posting. I started with...

Greetings, Excuse my English. Does anybody with MND have a Problem with Objective Ear Knocking on both Sides 24/7 and both Eyes Twitching in Same Frequenz? Even my JAW Tremor is same Frequenz. I Really dont know what to do, beacause Nobody Never had Symptoms like this. I Cant sleep beacause i...

Previous thread here. Good evening. Just got my second Emg. This one was done at a ALS specialist hospital accredited by the ALS Association. The Dr was extremely thorough and explained everything he did. It took about 2hours and he checked every where except my eyes! Conclusion was Mildly...

2 prior EMGs (Nov & Dec) with neurologist #1 noted chronic denervation, resulting in a "Possible ALS" diagnosis. First EMG (Aug) did not show any issues. Dr #1 was clear that lack of muscle weakness/atrophy after 9 mos of continuous fasciculations and cramping was encouraging. Next EMG in 3...

https://newatlas.com/als-mnd-drug-clinical-trial-success/58026/?fbclid=IwAR1dOxTr-tJmf4NQrwUU1_KfxNulx8mxNHBqjXL_YU8hHcm1suw9r6aAnBE I have a hard time reconciling this with the fact that my free copper was high at diagnosis and I got it down to normal levels. My serum copper level was always...