diagnosis

  1. Bestfriends14

    Leap2bfit

    Hi all, The above protein/energy drink has been touted as a miracle drink for those with ALS. So much so that it claims that out of 250 people, half had symptoms stopped or reversed. It's been heavily pushed on an fb group site where they are now asking for money in order to "gift" two months...
  2. worrieddaughter77

    My dad is still kicking, but recently got the flu.

    Hello, Sorry I've been away from the forum for a long time. Two teenagers, one baby, and full time care of my dad (shared with my mom) was tough.. And then... We decided to move from the USA to Finland. It was my husband's idea actually... He dragged us in June 2018 because he thought we could...
  3. T

    Where to Go From Here

    Hello. My husband was diagnosed ALS May 24, 2018 at age 43. It all began in April 2017 when he began having difficulty clipping his nails, left hand onset first. From there it was over a year of testing, specialist, etc, which is the only normal thing I guess about this disease; difficult to...
  4. C

    MRI and now call with doctor

    So my Dad was called for another MRI of his brain 7 months after ALS diagnosis. That was 2 weeks ago. The neurologist said she wouldn’t call if nothing shows up. Today her office called and asked if my Dad was available for a phone call from the neurologist tomorrow at noon. Does anyone have...
  5. A

    I have to rule out ALS

    My story starts in Feb 2018. During an xray for shoulder pain they discovered my left diaphragm was elevated, but they didn't bother to tell me. They gave me painkillers for shoulder bursitis. I complained to my PCP in Sep 20108 of constipation. She ordered an abdominal CT scan that showed...
  6. C

    Another DIHALS - Sorry friends.

    Hello all, my name is Christian and im 27 years of age. First of all i want to tell you all im a little embarrased to come here without any diagnosis and "annoy" all of you good hearted people with another of these threads which i can tell you've seen plenty of. With that said im also kinda...
  7. J

    Medicare-Can I Apply While on Sick Leave?

    I am a federal employee who recently started using my accumulated sick leave after working for the first two plus years after diagnosis. In my preparations for filing for Medicare/SSDI, I cant tell if I have to wait until I have exhausted my accumulated leave before I apply since I will still...
  8. MarieLaure

    Soon after diagnosis

    On his first clinic day after diagnosis my dad saw a psychologist who asked him to model how he saw himself in a sort of clay or children doth sort of thing. At the time he could still move his hands a bit but not all of his fingers. He was surprised to see that his work made him think of...
  9. C

    A Complicated Case

    Good afternoon. My name is John Marburger. I am 42, a retired Naval Officer and cancer survivor with some oddities at that go along with it. Apologies in advance for the length of this post and MANY thanks in advance for those of you reading or responding to it, especially those fighting this...
  10. P

    One week since diagnosis...

    My girlfriend was told that her symptoms are consistent with ALS a week ago at Mass General Hospital. As I stated in previous posts I have known for a while...and her dirty EMG sent us to Boston for the second opinion/confirmation. The first few days were spent crying/ holding her. She now...
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