diagnosed

Thank you to everyone on here who donates their precious time to answering questions from strangers on the internet. I’ve read the stickies, and a significant amount of posts on here (and am moved by your patience and compassion). My question is: in your collective experience, whether personal...

Hi there – I am a 53 year old female and was recently diagnosed with MND, probably ALS, after two abnormal EMG’s in December. I have had blood work for the usual things (all negative) and MRI’s for the spine and brain (also negative). My only presenting functional issue is weakness in my...

My husband is newly diagnosed and a veteran. We contacted PVA in Houston and PVA filed a claim for benefits. Does anyone know how long this should be taking? Once the claim was filed, the PVA person will not reply to our emails or phone messages. We are new to this and thought PVA would be...

Hello to everyone there fighting dificult times. I Am a 46 year old woman from Spain Who has some symptoms and has some doubts about if these could be of ALS. I Will try to tell you my story short so as not to bother you with boring details. In September 2017 I started having pain and...

Curiously two different Dr. looked at same EMG and came to a different conclusion. Any thoughts? (diagnosed with ALS, Dec. 24, 2018, diagnosed w. PLS 1/17/19)

Hi there, I've had daily, widespread muscle twitching for the past 5-6 years. I never thought anything about this and thus never even mentioned it to a doctor. Both of my calf muscles have been twitching more or less constantly for the past year (in addition to random twitches elsewhere in my...

Karen, I must admit I am wondering the same thing...slow, fast, average? I know today is a gift, we should live each day and day by day, but my wondering has to do with decisions that need to be made. My PALS was diagnosed in January 2018 with symptoms becoming very noticeable in August 2017...

Hi All, My dad was officially diagnosed with als in March 2018 although he was exhibiting signs as early as May 2017. I remember going to the neurologist for the diagnosis and my dad walked there. Slowly but he walked. Now he can barely walk in a walker. His left side is much stronger than his...

Hello everyone, I wanted to introduce myself ... My name is Natascha, I am 41 years old and mother of two children. In 12/2000 ALS was diagnosed. Since the course at I am very slow, I am the second opinion in 04/2018 in another ALS special clinic. Unfortunately, the ALS was also confirmed there...

Hey everyone. I've never posted on a forum before such as this one, although I've long been someone that often browses to see what others are going through and that people have to say. But I'm genuinely at my wits end and don't know how to cope any longer, so perhaps just discussing my issue a...