I was diagnosed by a neurologist about 5 weeks ago after two EMGs and MRIs confirmed his suspicions. I'm not sure how long I've had this as I was in treatment for Lymphoma in 2014 and never fully recovered from Chemotherapy. Now that I have done some research, I think I was passing off some...
advice
als
book
breathing
caregiver
clinic
diagnosediagnosed
fatigue
feeding
female
hospice
neurologist
newly diagnosed
problems
research
support
swallowing
symptoms
symptoms of als
tests
travel
treatment
voice
walker
it is hard to make a deal with yourself, when you decide to get yourself one, game is over.
what was the reason you've decided to use wheelchair? fall? non-ability to make xy steps? how long before/after diagnose? i think that this is crucial life decission which erases all hopes, change dreams...
Hi All,
This past Friday, my father was diagnosed with “some form” of ALS by a neuromuscular specialist. He is being sent to an ALS center near him in Potomac, MD, and will get more details on form, prognosis, etc. At this point we know very little, but what we do know - the diagnosis - is...
After posting back in november about being concerned for my father having als. Today it has been confirmed. Everyone is in total shock. I just feel helpless. His mucus is terrible, hes got a patch to help him, im trying to make a joke and stay positive but i know this is gonna be difficult. Is...
Hello everyone, I just want to start off by saying that I know only a doctor can diagnose me with anything. I have also read the stickies and have a few questions about hypoflexia. I realize no one can diagnosis me with anything but a doctor. Like, what is it exactly and how is it diagnosed? And...
als
anxiety
arm
back
brain
breakdown
clinical
diagnosediagnosed
diagnosis
female
health
hypoflexia
mri
muscle
muscle weakness
neurologist
please help
questions
research
symptom
symptoms
symptoms?
test
twitching
vitamin d
weakness
work
Hi. My name is Dave H from nebr. Was diagnosed in Feb 18 and then Mayo clinic Mar 2018. 61 year old with the emotions of a 5 year old these days. Hard to understand and accept when I've been healthy My whole life. Not exactly a group I thot about joining but I know there are incredible people...
Hi All,
My husband recently got diagnosed with: BRACHIAL AMYOTROPHIC DIPLEGIA. Is there anyone else on this support group who has this?? All functions work, except both his arms/hands. Also called Man in a Barrel.
can not say when my als started. i had dizzines and stil have it and that's why i visited neurologist.
i felt something is wrong in spring 2015., something with balance. tripping, falling etc. did all tests by 06 /2016 and there were no signs at all. emng ok, all als tests ok, even i felt bad...
I had sought and received useful feedback in June and November 2017. At the time, my neurologist had two possible diagnoses: a type of neuropathy or ALS. I was being treated for neuropathy with IVIG, and -- given my exercise regimen and other information -- commenters thought I did not have...
Dear Moderators and senior members I express my SINCERE and UTMOST apologies to you all and I ask for forgiveness for my recent irrational behavior and what appeared to be disrespectful actions.
I ask that if you want to ban me again its ok but please could you leave this post up for those who...
advice
als
arm
atrophy
back
bfs
clinical
diagnose
diagnosis
early
emg
fingers
free
muscle
neurologist
onset
second opinion
story
symptoms
tests
twitches
twitching
wanted
weakness
worried
worry