diagnose

  1. jethro

    Difference between diagnoses

    Friend, 61 yo, thought that she had als. after examination where everything was ok, she is suffering for a 4 years and finally she got diagnose: code g54.5 - neuralgic amiotrophy. she had all symptoms identical like me, but i'm "right side", she is left side". she doesn't use internet, so i am...
  2. E

    BACK WITH UPDATE - 4 months in

    Hello everybody. Thank you in advance to everybody acknowledging my post. I will keep this as short as possible as I’m aware many of you are busy dealing with other people’s queries. I’m back after posting a few months back. Below is a summary of my symptoms. I’m happy to report I took all of...
    • Elizabethm12
    • Thread
    • ability advice als als? back bed bfs clinical diagnose diagnosis early exercise fasciculations fatigue motor neuron disease muscle neurologist pain shaking symptoms tremor twitches twitching update weakness worries
    • Replies: 4
    • Forum: Could this be ALS?
  3. B

    Newly diagnosed

    Hello everyone, After having received a diagnosis of PLS 7 months ago, my doctor changed the diagnosis to ALS 2 weeks ago based on lower motor neuron symptoms. I've been on riluzole for 3 months, and just signed the paperwork to start radicava. My mind is definitely spinning at the moment, so I...
    • bostongrl
    • Thread
    • als diagnose diagnosed diagnosis motor neuron symptoms newly diagnosed pls questions radicava riluzole symptoms wanted
    • Replies: 8
    • Forum: Newly diagnosed
  4. T

    Seeking Advice From PALS and/or Recently Diagnosed

    Hello - I have been experiencing neurological symptoms since around January. It started out very sensory in nature but over time, there have been some issues with my left hand/arm that have created some other concerns. Let me state the following because I am looking for insight as to what my...
    • Tarheel2005
    • Thread
    • als arm autoimmune clinical confused diagnose diagnosis emg eye hope idiot lift media muscle pain pals problem progression shoulder support symptoms test tests twitching wanted weakness
    • Replies: 5
    • Forum: Could this be ALS?
  5. T

    Hello everyone- I want to share the end of my story

    Hello everyone. I have posted here before. I would like to post one final time and share the end of my story in hopes that it will help those who come here in future in a similar situation to mine. This will be long, so please don't feel like you need to read it- I am not seeking help, but just...
    • Thegabe101
    • Thread
    • ability abuse als atrophy calf atrophy clinical diagnose diagnosis fatigue friend lead medicine money muscle neurologist neurology onset pain research story symptoms tests twitches twitching weakness
    • Replies: 7
    • Forum: Could this be ALS?
  6. M

    Recently diagnosed

    I am a 61 year old female diagnosed in May 2018. Not a fan. Most of my issues are with my legs at this point and I am hoping to return to work (working from home though). Been to the ALS clinic here in Toronto and they were really supportive and helpful. Doing physio. Getting a foot brace for my...
    • Mraz
    • Thread
    • als baclofen clinic diagnose diagnosed female foot helpful love swelling work
    • Replies: 11
    • Forum: Newly diagnosed
  7. M

    Mom recently diagnosed

    Hello All, My name is Meaghan, and my mom Nancy was officially diagnosed with ALS in December by the Cleveland Clinic. We've had a scary few weeks, with her going into the hospital May 1 (trouble breathing), and coming out with a trach, Trilogy, and PEG tube (and all that comes with that-...
    • meaghanb13
    • Thread
    • advice als bed bedpan breathing clinic diagnose diagnosed hoyer peg trach trilogy
    • Replies: 7
    • Forum: Newly diagnosed
  8. I

    Husband newly diagnosed

    Hello Everyone, we’re having a really rough day today so I decided it’s time for me to reach out. My husband got his first diagnosis 5/21/18 and a second opinion confirmed it 6/14. He started noticing weakness in his arms on one side just after Thanksgiving. It then progressed to the other...
    • Islander1019
    • Thread
    • als angry brain dad diagnose diagnosed diagnosis emg family hearing husband insurance mri neurologist newly diagnosed planning problem reading sad second opinion support testing tests therapy weakness work
    • Replies: 17
    • Forum: Newly diagnosed
  9. M

    Progressing more and more

    Hi all, i've posted a few time and i've got nobody else to turn to for help or guidance. I've tried to go private for further testing instead of thought the NHS, but it's the same neurologist i've seen previously. I've switched GP's now as well. GP says I need to go to a Neuromuscular...
    • Mike001
    • Thread
    • als back burning diagnose diagnosis diet emg muscle muscle wasting neurologist problem testing twitches weakness
    • Replies: 3
    • Forum: Could this be ALS?
  10. N

    Just diagnosed

    Hello I’m 55 years old and I was just diagnosed with ALS, how can you tell how it is progressing?
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