Hi there. I have been wandering around this site for quite a few months reading the different posts and just recently became a member. I am extremely sad to see the pain that so many individuals and families are going through in living with this disease.
I'm not sure why exactly I am...
back
children
clinic
coping
depressed
diagnosed
diagnosis
emg
family
fear
neurologist
pain
reading
sad
slurred speech
speech
stress
support
symptoms
tests
work
Velma’s Journey
Velma Velazquez realized something was wrong, she didn’t know what is was, but she knew that it was affecting her. On September 22, 2012 she began to keep a journal. This is her account, in her words, of the medical treatments that led to the diagnoses of ALS and a few...
als
angel
back
bed
brain
cramping
cramps
crying
depressed
eye
eyes
family
fell
headache
mri
muscles
neurologist
night
pain
please help
problem
scared
spasms
test
tests
weakness
wheelchair
wrong
I am 21, female and 32 weeks pregnant and can't believe this is happening to me and so fast :(
Bit of background- my symptoms started properly about 3 weeks ago and progressed rapidly. I had had some discomfort before this that I paid no attention to- aches/numbness that came and went and...
advice
als
anxiety
arm
breathing
bulbar
choke
cold
depressed
emg
emg?
eyes
fear
female
flu
go away
health
ice
life
lift
mental health
mri
muscle
muscles
neurologist
night
nose
onset
problems
progression
shaking
stiffness
swallowing
symptoms
test
tests
tongue
tremor
twitch
twitches
wanted
weakness
wrong
young
Good afternoon.
Well, I guess my Dad is one of the unlucky ones.:cry:
He was diagnosed on Monday with ALS at Johns Hopkins Hospital. They haven't said exactly, but I am pretty certain it is Bulbar onset.
Now, I will try and give you some backstory to fill this story out. It's like a real-life...
als
angry
brain
breathing
bulbar
bulbar onset
confused
cry
dad
depressed
emg
father
heart
hours
kids
life
myasthenia gravis
newly diagnosed
night
onset
running
shortness of breath
surgery
tests
treatment
ventilator
[I'm posting this again without my original closing sentence that someone thought was religious. I'm not religious, and nothing religious was expressed in my post or in any replies before the post was removed. But I guess there's no use quibbling with a censorious site moderator who thinks I...
als
back
brain
christian
christmas
death
depressed
diagnosed
eyes
family
family member
feeding
feeding tube
hours
life
locked in
morphine
night
paralyzed
questions
stroke
tobii
treatment
ventilator
wanted
wheelchair
wrong
From the first mention of ALS, I believed my wife would not want to live locked in, and it came as no surprise that when she prepared her advance directive, she wrote that she did not want anything done or omitted by her doctors or nurses with the intention of taking her life, but that she...
Hey, i am 18 Years Old and i am from Germany. I have read very much here since i started to get fasciculations at my whole body. I have to say that i am very hypochondrial (Is this the right translation?) i always think the worst maybe because of googeling everything i notice. But what makes me...
18 years old
age
als
cry
dad
depressed
equipment
fasciculations
father
fingers
hope
ice
muscle
please help
problems
scared
shaking
sma
symptoms
symptoms of als
thumb
work
Ah my dear friends, thanks in advance for your support. I'm sending much love to all who spend their time in service to others here.
Navigating the medical world is scary, even (especially, perhaps) for a med student. There's still stigma to being ill in this field. :/
I'm a male med student...
Hello! I'm a 25 yo man who thinks has ALS. All my life I have had fasciculations, since I was a child I always enjoyed watching and feeling them (arms, legs, face, abdomen, etc). 8 months ago I noticed weird fasciculations in my left calf and tremors in my tongue. Widespread fasciculations in my...
Hi!
Im a 30 year old female. 3 months after my son was born I started to get wide spread body pain in my upper arms and legs, followed by thousands and thousands of twitches in my whole body. I also get these weird crawling sensations in my legs as well. Yes I know ALS doesn't cause pain that...