Hello, All.
Male, 20 yrs old.
I have visited forums last year and explained symptoms but was told I had no reason to have ALS. However I have been experiencing other symptoms on occasion.
- I bite my tongue lightly sometimes when I either talk or not talk (starting to develop a scalloped...
Let me start off by saying that I appreciate that this forum is here! Thank you to anyone that takes the time to read my post and respond. I know no one is a doctor or a neurologist but it does help to talk about the concerns. Ok so history:
I am a 29-year-old female that has been relatively...
I would like to share my mother’s story with you in the hopes that I can receive advice regarding my family’s situation. This might seem like a very ‘dry’ explanation of the situation, but I assure you that there are a lot of emotions involved
My aim is to give the clearest and most objective...
advice
age
als
breathing
confused
cry
dad
denial
depressed
diagnosed
diagnosis
equipment
eyes
father
friend
life
peg
planning
sad
story
stroke
support
tests
tracheotomy
treatments
wanted
worry
Dear fellow caregivers, my first online support group post. My spouse was diagnosed with ALS in 2015. We started to notice fasiculations in his upper arms and shoulders. Then he had a couple random falls when walking out in the community. We went to hospital for he did not have a GP. They then...
2nd opinion
als
angry
back
caregivers
clinic
depressed
diagnosed
frustrated
hope
husband
ice
life
meds
muscle
pain
problems
scared
speech
support
surgery
swallow
symptoms
symptoms of als
wanted
I guess our rolling thread closed.
Sometimes I come on the site and feel very depressed to see so few PALS posting. I guess they are either unable or (better) out living their lives.
My life has changed so much since I fell in September but I finally got my van and will have it converted in...
I am hungry in the morning and have a bowl of cereal, and I have a sandwich for lunch. My problem is dinner. I don't feel like eating any food for dinner. Sometimes I take one bite and then stop eating. I actually feel nauseous at the thought of eating. This makes my CALS, my husband, very...
Hello,
Since my dx I've been to three ALS Specialty Clinics. One was strictly for a second opinion and it was out of state.
Two weeks ago the doctor I ended up with (since my diagnosis) told me that the level of pain I was experiencing did NOT happen in ALS and said "pain other than cramping...
als
ankle
autoimmune
back
breathing
breathing issues
clinics
cramping
depressed
depression
diagnosis
family
family history
free
motor neuron disease
muscles
onset
pain
paralyzed
problems
pulmonary function test
research
second opinion
swelling
testing
travel
vent
weakness
My daughter is employed as a caregiver for someone with ALS.
The patient is advanced and has no motor capability and communicates by speaking/lip reading.
Winter time is typical for depression to set in with this patient, which in turn leaves my daughter feeling frustrated.
Does anyone have...
Hi All. I am so sorry I have not been visiting, touching base and offering support. I have been putting one foot in front of the other. After feeling slightly more positive at the 7 month point after losing Iven, I took a nose dive and have been struggling to keep my head above water (gee what's...
I have tried to refrain from posting on here. I apologize if I am bothering anyone. I have been experiencing symptoms for 16 months now . I just don't have the guts to go back to the doctor . For my job I had a general physical and my reflexes were normal . They had me stand on my toes and do a...