denial

Got an email from Duke saying that my insurance denied a BiPap for me because I didn't meet Medicare guidelines. Here's what's frustrating: 1. On October 16th Bcbs approved a trilogy for me, however they refused to pay the $1,450 per month and wanted a rent to own deal. DME company refused so...

I'm new to this forum...my husband was given his diagnosis last month when I was out of the country on a cycling tour. I feel terrible that I wasn't there with him - I thought it was something minor. His current diagnosis is non-specific MND but he is telling me of his symptoms and I believe...

Hello, My husband (34) was diagnosed two weeks ago. While I have been watching the progression over the last 4 months and have been able to somewhat prepare myself, I too am at a loss. I have been with this man since we were in high school, we have a 5 year old little girl, and are in...

Hello everyone. I am still a very new caregiver for my 64 year old mother with rapidly advancing ALS. She was diagnosed at the end of September and Hospice called within a week. She is still in denial of how much time she has, but the doctors say that it isn't long. So here is my...

I expected this to happen. Medicare is sending me the paperwork to appeal the denial of the elevator seat. Has anyone had any luck getting this decision reversed? If so, do you have advice on what to put on the appeal form? It's so crazy that they don't think the elevator seat is...

My husband was diagnosed in September. We are awaiting a second opinion from the VA but still waiting for an appointment. In June we traded both our Harley's in on a trike because my husband couldn't hold up the bike with his legs. The trike was supposed to give him more riding time but now...

I am still very new to this forum, my mother was only diagnosed three weeks ago and given less than 6 months to live, but in this time I will like we have been dealing with this forever. Watching the strong woman that I know struggle to swallow and breath. But we do have good days. We actually...

Hi, my mother in law is in her mid 50s and after a couple months of tests has been diagnosed with bulbar onset ALS. My in laws told my husband and I on Monday in their home and my husband is not talking about it or really acknowledging it since and Im concerned. Ive told him we should go over...

There appears to be considerable confusion among patients, doctors, caregivers, and regulators about the right of ALS patients to elect who will provide their care. The rule is actually very simple: an ALS patient should have the right to elect who will provide their care—licensed or...

Hello, I have been having symptoms for about 2 years and began putting it all together about 1 year ago. Then denial hit and even though I had a referral to neurology for now constant slurred and worsening speech, I put it off until May of this year. I just last week received an ALS diagnosis...