denial

Hello - My wife, whom we suspected had bulbar ALS for months but she refused any intervention, was "leaving me" and packed her bags. Before she left she call 911 and she had herself removed from our home. She put an abuse charge against me with Adult Protective Services, while at the hospital...

I've been experiencing slurred speech for about a year. In Mar I saw a neurologist and in April I had a speech eval and emg that were normal. In July my neuro saw tongue fasciculation and ordered genetic testing, which showed variant on ALS2 gene. In august I repeated the speech and was...

My mom went in to get her PEG today. She didn't really want it, but she said okay. I'm not really sure why. Actually, I know why. After being in denial for so long, she now will do mostly everything I suggest. It's a terrifying responsibility. I wanted her to get it because I am not ready for...

Has anyone tried the holistic approach ? Further testing for Lyme disease, heavy metal testing ect? My husband was recently dx with ALS and from doing some research it seems like his symptoms are different. He seems to have more generalized weakness that didn't particularly start in any limbs...

Hi, I am from India, and writing this to explain my Father's(51 year Old) symptoms. He started having some problems in his right leg 4 years ago which slowly worsened and finally 3 years ago extensive tests including MRI's, Auto Immune, Blood reports, EMG's and NCG. Everything came out normal...

Hi guys, my mom is booked in with her specialist this October for 6 hours worth of testing. Any idea what this might entail? After the testing, will they give us a prognosis and some treatment perhaps? I'm wondering what to expect and thinking I should maybe accompany my parents to this...

According to my Neurologist, I am progressing fast. I was officially diagnosed with a second opinion on June 8th. I turn 65 in November, have a wonderful husband, two adult children four grandchildren, and excellent friends. I have had a good life; however, I do not want to continue living this...

Wow, I just had a wonderful experience with a very nice lady with the VA insurance division. She found problems with our insurances that might have cost me a lot had I lost my darling recently. We refinanced the house and did the paperwork to reapply for mortgage life insurance. It turns out...

Hi everyone. I hope you are all doing well and are in good spirits. So, we did it. Miraculously, my mom and I organized ourselves and got a condo in DC and I moved her in on Sunday. I drove her from Santa Fe most of last week (we've gotten to a point where she probably shouldn't be driving) and...

Hi! I posted a couple of months ago when my mom was newly diagnosed. I was in total denial, completely desperate for answers – but have finally come to terms with this. She is still in the process of being tested, in fact in October has 6 hours worth of tests booked with the neurologist – any...