denial

Our hearts are completely broken. We lost my dad 2 weeks ago today. The visitation and service looked beautiful and perfect. Our emotions are every where one minute sad, denial and anger. I HATE ALS!! 7 months and he's gone.

Hello everyone, introducing myself here and seeing if anyone here can offer some help. I'm in desperate need. I'm a 34 yr Male. I apologise in advance for the long post. Things started around 3 weeks ago while I was away on holiday. I felt that my right hand was strange, and unable to...

Hi! First post here. Thank you for your insight in advance. I'm female, 35 years old. Please bear with me as I try to walk you through what's been happening. For the past 18 months, I've been experiencing strange "episodes" of muscle sensations. They usually come on slowly and last for several...

Hi everyone, My 66 year old Dad was diagnosed in April but has been declining for some time. It started with him losing weight for no reason. Separately, as far as we've been told, he has back and neck pain and over the past few years his posture has decline to very hunched over. His voice is...

Hi everyone, This is my first time posting and am looking for any advice relating to pregnancy with a ALS diagnosis. I started getting my symptoms 2 years ago when I was 24. It started in my left hand and eventually the constant twitching started in my arm. I have had numerous MRI's, blood...

My apologies for not closing my other thread, as I do not know how. Why can I not do this? Anyway, hubby was unofficially diagnosed on the 12th and we have our appointment at the ALS clinic on the 30th for an official diagnosis. The doc who did the unofficial is a specialist in neuromuscular...

Here's my vent of the week... I find myself being sensitive to some things that in the past would not have bothered me. I don't know if it is the sleep deprivation, the worrying or whatnot, but listen to my story. My sister in law has been very supportive throughout my PALS illness. If...

I am not going to spend to much time and energy on this because it's not worth it, but just a brief vent here if you cafe to read further. Since nearly the day of Brian's Dx, I have done a Blog on Blogspot that was called "Life, Love & ALS". I have posted maybe twice a month. I think there has...

I did some small things today that made me feel better. I moved the weights and bench from the middle of the basement that I had to look at every time I fed the cats (he does not do that anymore). He had not used them since November and today I realized it was paining me to see those All The...

Well I am glad to say my feed tube surgery went well and I am recovering good these last six days. I guess what I like to pass on from the experience is what I had heard from the folks that had it done before me. Even though this can be a simple procedure it still takes it's toll on our...