denervation

  1. D

    What should i ask at my next visit?

    So I have a an appt. coming up on the 1st of March and I haven't gotten a true diagnoses yet. The team at OSU neurology believe its ALS, I am not convinced however because my symptoms are really atypical. My first symptoms were fasciculations 8 yrs ago in my calfs, constant, not painful with...
  2. H

    Need some help on weight gain and stomach collapsing when I lie down

    Hello everyone. So a bit of background for me. I had some issues swallowing for over a year. I had an EMG in Oct 2017 that indicated diffuse denervation. I thought it was multiple sclerosis at first, then Kennedy disease then oculopharyngeal muscular dystrophy due to wishing it wasn't ALS and...
  3. S

    My latest Emg and apologies in advance.

    Hi. I realise I have posted a lot and asked a lot of questions so apologies. You have been so kind to answer. It is sincerely appreciated and I haven't been back for six months because I wanted to resist bothering you. I am however still in diagnostic limbo after 2 and a half years. I stated...
  4. D

    Should I be concerned?

    Good morning, I'm new to this forum as a member, but have reading you for a while and know enough to be really scared. I am female of 32 years old, with neuro symptoms for two and a half years. Since than I have been to two neuromuscular neurologist several times. Prior these symptoms ( 9...
  5. J

    Year Long Problems

    Where do i begin? I am so scared at this point. Docs have freaked out about my situation. Been seeing a neuro as well for a while and he has seen "changes". My name is Juan Vela am 36 Years old. Have been married to my wife since i was 20 and love her more than anything. Have three healthy...
  6. D

    Emg questions.

    Hello to all, I just have a question about my most recent emg and ncv. It was stated that both were abnormal. It showed chronic denervation with partial reeinnervation along with many fasiculations without psws and fibs present. The ncs showed peroneal nerve motor damage slowed about 25% on...
  7. Clearwater AL

    Fasciculation

    I’ve been reading a lot of Threads and posts concerning Primary Lateral Sclerosis. And… this sub-Forum has been relatively quiet. Not to cause a stir but maybe create some discussion. If you have a confirmed or possible diagnosis of PLS and you are having fasciculation they are real but…...
  8. P

    Can I have some opinions?

    Hello Everyone, First of all I apologize to anyone if they have this, I mean no offense. Just wanted to list my symptoms and see if anyone thinks this is cause for concern. I am seeing my doctor on the 18th but I have been very nervous about my symptoms. Background, I am a 23 year old male...
  9. L

    Diagnosis changed and now uncertain again

    Dear PALS, I've been reading so many threads and posts since June 2017 and today I decided to post for the first time. First of all, thank you for all those informative posts and everyone that takes there time to answer. I will try to keep the post short, but it it's very complicated so please...
  10. J

    Muscle Biopsy report, ALS?

    For those who have had a muscle biopsy that confirmed your als diagnosis, can you share? There isn’t much to be found on the web and I am curious about mine. Here is mine, which I am waiting and fearing the worst with “deinnervation with associated reinnervation.” In addition to this, I...
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