After my sweetheart's death I went to my home country Colombia. Couldn't take his ashes because they were no ready and my plan to put him next to a beautiful tree is not possible since the farm is going to be sold. I don't know now what I am going to do. In the meantime I have them in our room...
On March 28 a little more than four months ago i started experiencing fatigue in my neck. I also noticed that solid and dry food seemed to get stuck in my throat after i swallowed and was very uncomfortable. As time went on i noticed i would wake up with my limbs feeling very weak, but it would...
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I'm sure this has been addressed in postings in the past, but I wanted to pass on a tip I wish I had followed while my PALS was alive: get your PALS passwords to internet accounts, bank accounts, etc.
During the illness I felt weird asking my PALS because it felt like I was invading his...
My paternal Grandmother died from ALS when she was about 59. Her son was also diagnosed with ALS in his seventies but died from a stroke. My dad died at 83 with some form of dementia. My brother died last year from ALS at 60. As far as I know there has not been any genetic testing because of the...
It was my PALS funeral and burial yesterday. My sister-in-law and I worked together to plan the service. My PALS was half Jewish (I was raised Catholic) but he was agnostic. His sister and I worked out a compromise to make the memorial follow tradition without being overly religious. The...
According to the Cal Dept. of Public Health, up to 20 ALS patients have taken their own lives under California's "aid in dying" law after six months. I do not oppose the general idea of permitting physicians to assist the suicide of terminally ill patients who would otherwise suffer...
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I'm desperate! I have a history of laryngospasms since my ALS started. So for the last couple months I've been getting tickles in my throat that instead of causing me to cough they cause me to have a gagging fit that lasts until I can get a drink of soda. the gagging fits feel like they are...
Hello, I wanted to know about the value of getting genetic testing for my mother, who is 79 and in the final stages of ALS, and for me, a 40 year old father of 2. My maternal grandmother was diagnosed with Parkinson's in Asia at the age of 58. This was in the 1970's. she developed dementia...
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When can we, or should we, restrict online speech? Should cyberbullying be a crime, like it is to shout “fire” in a crowded theater or to yell “jump!” at someone poised on a ledge? What if the online message is written with compassion, but has the predictable effect of tipping someone over the...
I don't know where to turn. I have been grieving for 5 years now. The day my husband of 25 years was handed a death sentence with a diagnoses of bulbular onset als. My life has forever changed. I cannot function without medication. He passed away less that a year after diagnoses. It hurts just...