death

  1. P

    Freaking out but probably just bfs

    Alright I've had bfs symptoms about 4 and a half months ago that started with buzzing on my face and then lead to my ears and chin and then the next day I started experiencing twitching and buzzing body wide. I eventually got over it and figured it was nothing but then about a week ago the...
  2. K

    Update Survivor Benefits - VA

    Since you folks were so kind to give me advice and information, I wanted to give you an update. You may remember that I asked if my mother would be eligible for any benefits because my father passed away 3 weeks after his diagnosis and we hadn't filed for disability benefits for him. The PVA in...
  3. S

    Make no big decisions for 12 months?

    So I have read here that you should never make big decisions within 12 months of your PALS death... I am telling myself, I am going to follow that advice. Here's my struggle... Three and a half years ago, I left a job that I LOVED! I was a dispatcher for our local electric cooperative...
  4. M

    Grief

    Grief is such a strange process. You read about it, you hear other people talk about it, but it is not until you experience it that you realize how complex and unique it is. It's close to the 6th month anniversary of my PALS' death. My grief has changed. Someone once told me about the...
  5. A

    Màking hospice decision

    We met with a hospice provider yesterday and I am struggling with the decision to sign on. Really the only reason I am considering it is to get the morphine in the house to help with a peaceful pasśing, not that I'm ready for that quiet yet. I do not want to give up my neurologist and RT either...
  6. A

    Do i require a geneticists consultation?

    My mother and two maternal aunts all the three died of mnd almost at same age of 61 years. Nobody else was earlier diagnosed of the disease. None is afflicted at present as well. Since it has hapened to female members only and i am a mother to two daughters. I am distraught . I feel i have no...
  7. C

    dealing

    So, it has been 4 days since my dad passed. The pain comes in waves. I know that he is finally healed, but I miss him terribly. Please don't get me wrong, I don't miss the shell he was left with.... I miss my best friend. His death was horrible. I would like to say it was peaceful, however...
  8. S

    parent with bvFTD now falling

    Hi Everyone-- Hopefully I'm posting this in the right place. About 6 years ago my father-- longtime academic, loving husband, stay-at-home dad, and just all-around exceptional human being-- started acting...weird... at times. "Insidious" is probably the best word to describe the onset. It...
  9. Erika

    rough day today

    It's been 7 weeks since my mom passed away . My parents apartment has been emptied and keys have been returned. People and agencies have been notified, and death certificates picked up. Time slowly starts to go back to the pre symptom, pre Dr visits, pre ALS days. And I miss her. I know she's...
  10. tripete

    A new short story

    Raoljost - (A Guiding Light) Chapter 1 I wasn't able to run fast enough. My legs and arms were going as fast as I could force them to move and they burned with effort. My breathing was labored, but under control. Sweat poured from my brow and burned my eyes. I could hear the hounds of hell...
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