dad

This is to my father who passed away on July 25, 2018 at he the age of 52 from ALS. I am sad to say the I have not seen my dad in over 2 years and will surely miss him. The last time I talked to him was last year and the last thing I remember talking to him about was did you get snow where he...

Hi Everyone. I just want to say that I am very grateful for this site and the time that everyone takes to respond to each post. My dad started displaying symptoms last summer. He was falling a lot and having fasiculations. He went through a boat load of tests and was diagnosed with als this past...

My Dad has started feeling like something is stuck in his throat and concerned that bulbar symptoms are starting. I wanted to see if this is in fact how it can start in some PALS. He takes a bunch of vitamins in the morning and then does a light work out/yoga and that’s been when he notices...

Hi all! We’ve only been to our ALS clinic once to meet neurologist and clinic nurse which was two weeks ago. During the visit we inquired about a couple trials my Dad may be interested in as well as treatments Riluzole and Edaravone. The Neurologist and Nurse said they could give us no advise...

Hi all. My Dad is really being bothered by all the fasciculations he’s experiencing. Especially when trying to relax and at night. He gets them in every limb and his stomach. The neurologist confirmed that they don’t mean that the disease is progressing quicker so he’s not feeling concerned...

Is it the longer one is improving in affected limbs the less likely pls/als? Can plateaus last years?* I had a thread for my dad but it's closed now.* He doesn't want to go for more testing since nmd doesn't have treatment. He got the possible pls and that was enough. I'm the one digging...

My Dad is newly diagnosed at 59 years old. He’s always been in great shape, on a hockey team, long distance bike rider, and golfer. When his hand weakness started a year ago he slowly began to lose strength in hand and then some muscle atrophy in same arm along with twitching. My question is...

Hello, After two years and a half of symptoms, my father has been diagnosed with PLS. We are still quite astonished and it is hard to stomach the truth. Given that the EMG was clean, the doctor thought that this was the most likely cause for my dad's symptoms. We are starting treatment next...

Hello, I made a post a few months ago suspecting my Dad had ALS. Six months ago he was up walking, doing perfectly fine. It has been a steady decline to this point, and we have waded through rehab facilities and hospitals like they were hotels. My Dad was finally transferred to UAB Hospital...

Hello Everyone, we’re having a really rough day today so I decided it’s time for me to reach out. My husband got his first diagnosis 5/21/18 and a second opinion confirmed it 6/14. He started noticing weakness in his arms on one side just after Thanksgiving. It then progressed to the other...