cure

  1. N

    Another symptoms thread

    Hi folks, Another one for you. I'm 34, male, from U.K. I have read the recommended posts before putting this up and just wanted to get thoughts. Like seemingly the majority of those who are diagnosed with ALS, I had an innocuous bout of 'foot drop' in my right foot about 7 weeks ago. I felt...
  2. B

    How can I help?

    I apologize if this is in the wrong section. I posted in August, if I remember correctly, about my symptoms which started in May[24M]. They have not advanced beyond twitching. So it is pretty much certain that I do not have ALS. However, this scare has exposed me to something that I cannot...
  3. E

    PLS Study Columbia Univ Dr. Massac

    Well in August I was asked to be in a study for PLS. I was diagnosed 4 years ago. Their are 3 people from TX. Neurology in Dallas that are part of the study. Columbia Univ. is heading up the study. There are participants all over the USA , they are trying, at this point to get base line...
  4. A

    Expert opinion needed

    Hi firstly this group is amazing in the support and community for people affected by this horrible disease. I have learnt so much reading posts and intend to get involved and help in someway to find a cure. My symptoms....please provide some advice I have read the read before posts but I have...
  5. P

    Pinky toe drop?

    Hi all, I have been here and read through the stickies multiple times. For the past year my left side has been progressivley getting worse. It started with tingling in my left hand and foot last July. Since then i have had non-stop twitching in my left eye, twitching in my left foot and hand...
  6. S

    I finally have a diagnosis - Closure at last

    I used to post under zaranataly back in 2011 and then I used this username to post. Anyway, i came back because I received a lot of help and advice from everyone here and I believe that it's the right thing to do to come back and share with you my diagnosis. Dr. Killian from Dr. Harati's office...
  7. A

    Upset Rant

    Hi All, I'm having a really down day and need some help... and probably hugs.. i don't know. Here's a bit about us: My husband had his first symptoms 5 years ago in his calf muscles. Since then it pretty much stayed where it started, calf muscles. His toes are slightly affected, his knees a...
  8. kevinw

    What Happened Here?

    I know I am 100% guilty here also for not posting a lot, but what the heck happened to everyone discussing PLS? When I joined this forum in April of 2008 it was the place to be. I remember refreshing the PLS page every hour and there were new comments or topics. Now the last post was from 07/02...
  9. J

    Bulbar Onset Diagnosis - Nasal blockage

    Hi, I'm back! After my husband's diagnosis a couple of months ago, we have been travelling and visiting friends and family so our feet haven't touched the ground. but back to reality now for a few weeks before we go off again! Firstly, thank you all so much for taking time to reply to mine...
  10. P

    Is this ALS? Or can ALS improve?

    Hello I have some health problems for 5 months now and it is destroying me. And I have some questions for you to clarify what docs could not. It started with twitching in legs mostly in thighs and calfs but it became widespread. Next I started felling a weakness after some sport activities. Like...
Back
Top