cure

  1. chally

    Acupuncture

    Although certainly not a cure my weekly session gives me some serinity and a chance to clear my mind. This journey to the bury hole interesting as it is tends to wear a person out a little R&R of the mind helps recharge all systems. Lov yaall Chally
  2. jethro

    Cryopreservation

    desperate, just like everyone on this forum, i'm trying, trying... bureaucracy, science, time... everything is against us. what knocked me down is one scientist's sentence: "it is terrible to see patients dying faster then mice". time is crucial thing. my body is a weaker on a daily basis. so...
  3. S

    Update-hopefully to help others

    Hi, I am just posting to help others with the same anxiety I’ve gone through this year. I posted before with flaccid in a week and lmn sign. I’ve seen many top neuros and they agreed that I had something going on but couldn’t find the answer. I also received great advice from senior members here...
  4. C

    Please share your experience at ALS clinic - very frustrated!

    Hi all! We’ve only been to our ALS clinic once to meet neurologist and clinic nurse which was two weeks ago. During the visit we inquired about a couple trials my Dad may be interested in as well as treatments Riluzole and Edaravone. The Neurologist and Nurse said they could give us no advise...
  5. jethro

    Software companies, do they donate?

    we saw bill gates in ice bucket challange, nominated by zuckenberg. with just 10% of money they have, they can find a cure. have no info - did they donated? nothing is a such a problem but money...
  6. Buckhorn

    My sweet husband is gone.

    My PALS, husband Dave passed away a week ago, July 4th. It was sudden and I did not expect it. Dave had a history of DVT's, pulmonary embolism, and a heart valve issue, which had been monitored closely by a cardiologist over the years. After Dave's ALS diagnosis, we both felt a heart attack or...
  7. T

    Question about life if a cure is ever found.

    It's been a while since I have checked in. Life for my son and myself, as caregivers, is almost unbearable. My PALS is totally paralyzed from neck down. He has a feeding tube and is on a ventilator. He seems a little more depressed lately. Still doesn't sleep well at night so my son and I...
  8. M

    19 year old terrified

    Hello everybody. I am a 19 year old nursing student going into my sophomore year. I wanted to start off by saying my heart goes out to everyone dealing with this horrid diease. You are all such strong amazing people and my mother and I are looking to donate to the community and would like to...
  9. M

    My Wife

    Firstly, thank you for the opportunity to ask questions even with you all being busy battling ALS. My heart goes out to you all. I have also read the stickies and I want to stress at the very beginning that I am not looking for a diagnosis here (only doctor can do that) and I am also not an...
  10. T

    Question about end game planning

    Hi, this is probably the wrong place to post this, but I don't know where to put it and am comfortable in the vets threads. :) I am working on estate planning, not because I am in my end game, but because everyone should, incase they are hit by a bus. I apologize that this is a sensitive...
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