crying

Good morning! This is only the third time I have posted! I read all the posts and have learned quite a bit. I am asking for advise. My sister is recently diagnosed with ALS. It is very progressive and she is feeling like a burden and really scared for what might be coming. She is breaking down...

Hello---My name is Cathie and I am from Boston. After over a year of tests and doctor appointments I was diagnosed. I now am getting care at the ALS clinic at Mass General Hospital. I am walking with crutches and use a walker at home. I have stairs into my condo building and I am afraid I...

I don't write here much but am one that feels like I wouldn't be able to mentally get through this horrible progression of ALS without the people here. Mike is 47. He's my little brother, single with 2 young kids. I happen to be single with 2 grown children and live nearby so I am his main...

My wife's neurologist first suggested ALS in early October. I've been a basket case for the past couple of months. I don't know if your brain just runs out of "sadness juice" or it develops calluses but very recently I could feel the "fog" starting to lift. I guess you just can't hurt that bad...

My wife underwent a trache yesterday and is on a ventilator. She won't be home for a week. It's very tough and emotional for her. She woke up crying this morning in the hospital. I'm home now to be with our kids. My mother-in-law and sister-in-law are with her at the hospital now. I trying to...

He hasn't talked to me in three days. He's mad over something so he won't even look at me. Told me he can't turn his head to the right to look at me. But when I walked away his head was turned to the right just fine. I looked at him and he knew it and started to smirk. That is what he does...

Well, it looks like I'll be migrating over to the pALS forums. Went for my second EMG earlier this month (first one was in February 2016), Dr Elliott told us that they saw progression to the point of being fairly certain it's not PLS and is ALS. We talked to a social worker at UTSW and the MDA...

Yet, what choice do I actually have. Brian was diagnosed 6 months ago. He has a weaker left hand and has progressed to using a cane, mostly to to strength and balance issues with his left leg. Lately, I just can't stand it. I wound up crying in my bosses office just mentioning that my husband...

Hi, I have recemntly been told that I probably have PLS, although the neurologist is still ordering tests to learn more. I've always been active, most recently running half marathons. The last one I ran was in August... and now I need a walker or wheelchair to get around. I run to relieve...

Here's a forum I never wanted to join... There's a long version of this story. This is the medium version: It all started when my wife twisted her ankle in January, 2016. She developed a "dropped foot". I thought the dropped foot was a result of her twisting her ankle. How wrong I was... In...